Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,362 members • 10,549 posts

All posts for February 2014

My CAPS experience

Hi there my nickname is Tidux, I would like to begin with my introduction by first of all saying thanks to host and maintain such of helpful community. I have...

Hi there my nickname is Tidux, I would like to begin with my introduction by fir...

Tidux

•10 years ago

11 Replies

Professor Graham Hughes' - February 2014 - Monthly Blog

February 2014 January was the wettest ever recorded in the UK! Large areas of southern England have been under water since Christmas day. Rain, rain, rain....

February 2014 January was the wettest ever recorded in the UK! Large areas of ...

MaryF

Administrator•10 years ago

3 Replies

Finally getting referred to speak to someone about my APS after 17 years hopefully i can get all the answers i need. I need a blood test

For thyroid does anyone else have this problem.

Hidden

•10 years ago

1 Reply

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2.000 members!

http://www.youtube.com/watch?v=KiGd2770cHg MaryFx

MaryF

Administrator•10 years ago

9 Replies

Genetics...

I was diagnosed with APS 4 years ago after a DVT & PE. (I was 35) I have a 19 year old daughter that I wanted to be tested for any blood disorder before being...

I was diagnosed with APS 4 years ago after a DVT & PE. (I was 35) I have a 19 y...

lisakay

•10 years ago

5 Replies

Ocular Migraine or TIA?

Hello all, 2 weeks ago I had my 6th (and worst) vision loss in 18 months. An optometrist dx Ocular(Retinal) migraine last year when I had my second incident,...

Hello all, 2 weeks ago I had my 6th (and worst) vision loss in 18 months. An opt...

KatieA

•10 years ago

9 Replies

Finally set up to see a specialist.! Dr R. Brey

After my last post, and the good advice , that I do need to see a doctor knowledgeable about Hughes, aka antiphospholipid antibody syndrome. I had my...

After my last post, and the good advice , that I do need to see a doctor knowled...

tchance11

•10 years ago

9 Replies

VIA Hughes Syndrome Foundation/Fund Raising - Swanwick

Great local awareness raising by Ryan and Kate Bowden in the Nottingham area. Good luck Ryan with your first stage Tour de France and thanks for raising so...

Great local awareness raising by Ryan and Kate Bowden in the Nottingham area. Go...

MaryF

Administrator•10 years ago

1 Reply

Who has had any luck with the list of insurers on the charity website?

Just like last summer when I tried to insure my family by working through the list on the charity website - one again nobody will insure our family - once they...

Just like last summer when I tried to insure my family by working through the li...

MaryF

Administrator•10 years ago

9 Replies

Benign Paroxysmal Positional Vertigo or TIA or something else?

Be patient with my English :), I try to explain what happened to me yesterday. Suddenly the room started spinning wildly and I had nausea. When standing up it...

Be patient with my English :), I try to explain what happened to me yesterday. S...

Leenalina

•10 years ago

26 Replies

depression

Quick question..........does anyone with hughes here have, and always had underlying depression?

Quick question..........does anyone with hughes here have, and always had underl...

Andrewl

•10 years ago

34 Replies

After 4 years of good health - with warfarin and having stopped smoking, I am devastated to have suffered a mild TIA this week. Why?

Why do outbreaks occur even when on warfarin? Can stress or anything else cause it, as I believe not. Does anything help alongside meds - I am now back on...

Why do outbreaks occur even when on warfarin? Can stress or anything else cause ...

Edinburgh

•10 years ago

7 Replies

Again in case you missed the last post - VIA Hughes Syndrome Foundation website and Facebook Page: Next Patient's Day/St Thomas' Hospital

Hughes Syndrome Foundation We are holding our annual Patients' Day on Wednesday 14th May 2014 at St Thomas' Hospital, London. This is a unique opportunity for...

Hughes Syndrome Foundation We are holding our annual Patients' Day on Wednesday ...

MaryF

Administrator•10 years ago

1 Reply

Bleeding from nipple.

I'm on warfarin for diagnosed aps but have just started bleeding from one nipple. A bit concerned!

I'm on warfarin for diagnosed aps but have just started bleeding from one nipple...

Bonnie39

•10 years ago

9 Replies

Our son has been diagnosed with palindromic rheumatism but is not responding to treatment? Anyone able to help?

Our 27 year old son has been given a "working diagnosis" of palindromic rheumatism after nearly 2 years of extreme pain in varying joints round his body. He...

Our 27 year old son has been given a "working diagnosis" of palindromic rheumati...

Rockhopper

•10 years ago

4 Replies

Is it worth asking our GP to test our daughter for Hughes syndrome (aka anti-phospholipid syndrome)?

I have SLE, Sjögren's and Hughes syndrome and mild Raynauds syndrome. My mother had multiple sclerosis and our son has palindromic rheumatism. Think you could...

I have SLE, Sjögren's and Hughes syndrome and mild Raynauds syndrome. My mother ...

Rockhopper

•10 years ago

10 Replies

Spain

Hi, just wanted to say hello. Just joined! I moved a few years ago to Spain so have some experience of the 'moving process' and obviously transferred all...

Hi, just wanted to say hello. Just joined! I moved a few years ago to Spain so...

catno1

•10 years ago

22 Replies

Not feeling very well today.

I guess today is just one of those days when I just feel really sick :( Dizzy, no concentration and just plain blergh! Took an aspirin and I feel a little...

I guess today is just one of those days when I just feel really sick :( Dizzy, n...

xxkellywxx

•10 years ago

8 Replies

Patient's Day/St Thomas'/May14th -2014

Thank heavens for Facebook and the various groups, and of course the charity web page. I am able to extract information to load up on here:...

Thank heavens for Facebook and the various groups, and of course the charity web...

MaryF

Administrator•10 years ago

1 Reply

Does anyone suffering mind blowing headaches everyday despite taking your treatment ?

what can improve headaches, vision, memory loss despite me being on aspirin for my aps I still have these problems and they are everyday making me feel sick so...

what can improve headaches, vision, memory loss despite me being on aspirin for ...

Danielle2419

•10 years ago

13 Replies

Has anyone experienced a progression of symptoms for Unspecified Mixed Connective Tissue Disorder....?

I have APS and when I began to experience malaise and flu like symptoms again my Rheumy diagnosed Unspecified Mixed COnnective Tissue Disorder....prescribed...

I have APS and when I began to experience malaise and flu like symptoms again my...

Hidden

•10 years ago

4 Replies

London Hughes Support Group meeting

Hello! This is just to let anyone who is interested know that the next meeting of the London Hughes Support Group will take place on Wednesday 30th April from...

Hello! This is just to let anyone who is interested know that the next meeting ...

YvonneW

•10 years ago

5 Replies

SERONEGATIVE Hughes Syndrome - by popular demand, some papers to read for further information

This post/section will be added to over time, but for now will contain a few papers, as often as Administrators we are asked for this information either out on...

This post/section will be added to over time, but for now will contain a few pap...

MaryF

Administrator•10 years ago

15 Replies

Travel insurance for those who have had a stroke????

I just wondering if anybody knows of a travel insurance body that is affordable for those who have had a stroke I am only going away for 5 days to...

I just wondering if anybody knows of a travel insurance body that is affordable ...

traceylou

•10 years ago

7 Replies

Possible connective tissue disorder - need some help in ordering the right blood test please

My Endo diagnosed me with Hashimoto's 3 weeks ago but she is concerned I have a connective tissue disorder - possibly the mixed type as I have Raynaud's as...

My Endo diagnosed me with Hashimoto's 3 weeks ago but she is concerned I have a ...

Hidden

•10 years ago

6 Replies

Worried about soft bones

I will try and make a long story short. I have APS for 14 years following PE, taking warfarin, statin and plaquenil for most of that time. I am 53 and went...

I will try and make a long story short. I have APS for 14 years following PE, t...

Elisabeth

•10 years ago

7 Replies

I wanna know about your APS/hughessyndrome. how you found out you had it, and what your symptomes are.

I just wanted to share my story with someone..(sorry for my bad english, I hope you can understand me) nobody here realy care, when i told a couple of my...

I just wanted to share my story with someone..(sorry for my bad english, I hope ...

newday3

•10 years ago

33 Replies

I gave my self a injection of Lovenox and now i have knot there what cause it to do that

Donnakayhenley

•10 years ago

4 Replies

Hughes Syndrome/APS on the tv tonightI

I am having a quiet night in front of the fire tonight with two cats.. Just watching Casualty on BBC1 featuring a patient with APS, MaryF x probably can only...

I am having a quiet night in front of the fire tonight with two cats.. Just watc...

MaryF

Administrator•10 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2014

My CAPS experience

Professor Graham Hughes' - February 2014 - Monthly Blog

Finally getting referred to speak to someone about my APS after 17 years hopefully i can get all the answers i need. I need a blood test

2.000 members!

Genetics...

Ocular Migraine or TIA?

Finally set up to see a specialist.! Dr R. Brey

VIA Hughes Syndrome Foundation/Fund Raising - Swanwick

Who has had any luck with the list of insurers on the charity website?

Benign Paroxysmal Positional Vertigo or TIA or something else?

depression

After 4 years of good health - with warfarin and having stopped smoking, I am devastated to have suffered a mild TIA this week. Why?

Again in case you missed the last post - VIA Hughes Syndrome Foundation website and Facebook Page: Next Patient's Day/St Thomas' Hospital

Bleeding from nipple.

Our son has been diagnosed with palindromic rheumatism but is not responding to treatment? Anyone able to help?

Is it worth asking our GP to test our daughter for Hughes syndrome (aka anti-phospholipid syndrome)?

More questions about blood tests - sorry :)

Spain

Not feeling very well today.

Patient's Day/St Thomas'/May14th -2014

Does anyone suffering mind blowing headaches everyday despite taking your treatment ?

Has anyone experienced a progression of symptoms for Unspecified Mixed Connective Tissue Disorder....?

London Hughes Support Group meeting

SERONEGATIVE Hughes Syndrome - by popular demand, some papers to read for further information

Travel insurance for those who have had a stroke????

Possible connective tissue disorder - need some help in ordering the right blood test please

Worried about soft bones

I wanna know about your APS/hughessyndrome. how you found out you had it, and what your symptomes are.

I gave my self a injection of Lovenox and now i have knot there what cause it to do that

Hughes Syndrome/APS on the tv tonightI

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