Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for December 2012

funny head with heat type feeing

Has anyone had this strange feeling? On Warfarin etc but today had this feeling again and when I spoke to ST T months ago told it was because the TIA had...

Has anyone had this strange feeling? On Warfarin etc but today had this feeling...

daisy11

•11 years ago

3 Replies

Where are my Christmas witches?????????

Every one must be doing there last minute shopping ? -- now myself i just started :-(----- will be back at it on Monday {can't rush these things you know}...

Every one must be doing there last minute shopping ? -- now myself i just start...

jetjetjet

•11 years ago

5 Replies

Faker/fraud no more

I think looking into medical history some of the signs were there, if u knew what u were looking for....long story short...I still felt a faker as I'd not had...

I think looking into medical history some of the signs were there, if u knew wha...

lollie

•11 years ago

1 Reply

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I have antiphospholipid syndrome. Is this Hughes Syndrome?

Is 75 mg aspirin a day adequate?

evie47

•11 years ago

13 Replies

B12 deficiency

Had a letter today from Guy's hospital with my recent blood test results. Apparently I have a B12 deficiency. My IgG is also double the upper limit (0.0 -...

Had a letter today from Guy's hospital with my recent blood test results. Appar...

janekins

•11 years ago

9 Replies

Anyone here have claw toes mine are just killing me the tendons at the back of my toes have shrunk

taffydaffy

•11 years ago

1 Reply

Need advise on moving doctors

Hi, I'm moving house in the new year and with APS and long term warfrin I'm worried about what to do what GP to look out for. How does the INR clinic work will...

Hi, I'm moving house in the new year and with APS and long term warfrin I'm worr...

MJLS

•11 years ago

11 Replies

i'm a baking

i'm am mass baking cookies for all those dc's and nurses that keep me up right- all the gal's in the blood lab--all nurses girls in yellow pod here in concord...

i'm am mass baking cookies for all those dc's and nurses that keep me up right- ...

jetjetjet

•11 years ago

5 Replies

Still scared

I am still scared!! My rheum told me that the borderline positive is nothing to worry about.. But she also told me that people with APS live for 100 years just...

I am still scared!! My rheum told me that the borderline positive is nothing to ...

Hollylewis

•11 years ago

4 Replies

Poor circulation

Hi. I'm wondering if anyone with APS suffers poor circulation in their legs. I have had weird sensations for the past three years which have got worse lately,...

Hi. I'm wondering if anyone with APS suffers poor circulation in their legs. I h...

Missdaisy

•11 years ago

12 Replies

seen a hemo today waste of time and effort

Hi people well i finaly got to see my local hemo today, not good as came from there feeling like i no nothing and be littled , and wanting to ring his neck,...

Hi people well i finaly got to see my local hemo today, not good as came from t...

daftdog

•11 years ago

8 Replies

sominex herbal

as cannot sleep at night time thought I would get Sominex Herbal. Has anyone experienced this before? Look forward to hearing from you

as cannot sleep at night time thought I would get Sominex Herbal. Has anyone ex...

daisy11

•11 years ago

3 Replies

Latest Poll: Are you Right or Left Handed.... or Ambidextrous?

Not really a question, but I found it interesting that out of the 60 respondents there are 18 percent who are left handed and 13 percent ambidextrous. In the...

Not really a question, but I found it interesting that out of the 60 respondents...

Leigha

•11 years ago

2 Replies

what tests are need to diagnose Hughes syndrome Please ?

lellydee

•11 years ago

Be the first to reply

When was APS discovered? I've had it for 26 years

strawberryblonde

•11 years ago

5 Replies

Does having Factor V Leiden and Lupus Anticoagulant mean I have Hughes Syndrome?

Hi, I was looking around the internet for info after speaking with my hematologist yesterday. Ive actually been treated for 7 years (had a dvt at 26) with a...

Hi, I was looking around the internet for info after speaking with my hematologi...

Sketcher1980

•11 years ago

6 Replies

Hi all , I first became ill about 8 - 10 years ago with all the simptons that pointed to sle Lupus , rash ,itching ,

Hi all , I first became ill about 8 - 10 years ago with all the simptons that pointed to sle Lupus , rash ,itching ,,sunlight exposure ,ect ,the worst i think...

Hi all , I first became ill about 8 - 10 years ago with all the simptons that po...

lellydee

•11 years ago

5 Replies

Festive fun everybody

Love from Mary F x http://www.youtube.com/watch?v=D2FX9rviEhw

MaryF

Administrator•11 years ago

2 Replies

What is happening am I developing treatment resistance ?

Morning all Just want some advice really I'm 31 was diagnosed with hughes 7 years ago after a long struggle with multiple rare health problems many DVTS...

Morning all Just want some advice really I'm 31 was diagnosed with hughes ...

Dann

•11 years ago

5 Replies

IGM

My IGM was positive and everything else negative. What does this mean please help

My IGM was positive and everything else negative. What does this mean please hel...

Hollylewis

•11 years ago

7 Replies

Lupus

After almost 3 years of searching for answers, last week I was diagnosed with seronegative lupus. The doctor evaluated previous blood tests and also physical...

After almost 3 years of searching for answers, last week I was diagnosed with se...

BrazilianBade

•11 years ago

2 Replies

Lupus and fatigue

Because I knw there is a lot of overlap I thought some would profit from this recently posted Lupus Foundation of America Q and A on lupus fatigue:...

Because I knw there is a lot of overlap I thought some would profit from this re...

GinaD

•11 years ago

2 Replies

Before diagnosis

My Drs are testing me for Hughes.. I am terrified.. We're all if you perfectly healthy before diagnosis or were there warning symptoms all along?? So far my...

My Drs are testing me for Hughes.. I am terrified.. We're all if you perfectly h...

Hollylewis

•11 years ago

17 Replies

DWP tribunal

I have never felt lower. I have waited over a year for the DWP to set a date for my tribunal, still no news. Last Christmas week, they announced that I would...

I have never felt lower. I have waited over a year for the DWP to set a date for...

Rhian21

•11 years ago

17 Replies

I found about Hughes syndrome, not yet diagnosed but know that this is the "why" i have been looking for. any help w/ getting started?

I have no clue of where to even start...What is it? I am trying to find credible sources and some support.

I have no clue of where to even start...What is it? I am trying to find credible...

kaylamarie

•11 years ago

13 Replies

The light at the end of the tunnel has been temporarily turned off!

Well after fighting numerous clots this year (here I refer not only to blood but Doctors too!), two strokes, intestinal bleeding, being in a coma, heart valve...

Well after fighting numerous clots this year (here I refer not only to blood but...

InSpain

•11 years ago

14 Replies

Disability Living Allowance - a very important petition for those in the UK

http://epetitions.direct.gov.uk/petitions/38182 Mary F x

MaryF

Administrator•11 years ago

24 Replies

Research study: The syndromes of thyroid autoimmunity among patients with antiphospholipid syndrome

http://www.endocrine-abstracts.org/ea/0029/ea0029p1659.htm

editfmrt

•11 years ago

2 Replies

Mother vulnerable adult, victim of fraud and financial abuse, still ongoing

My mother suffers Antiphospholipid Syndrome, Systemic Lupus Erythmatosus, mild cognitive impairment, cerebrovascular disease, patches of brain damages...

My mother suffers Antiphospholipid Syndrome, Systemic Lupus Erythmatosus, mild c...

worriedfamily

•11 years ago

23 Replies

Success I've had a baby after heparin therapy

Hi all I had my baby girl on 28th oct 2012 at 10:5pm weighing 4lb 7oz a quick induced labour at 34 weeks as despite being on aspirin and heparin the blood flow...

Hi all I had my baby girl on 28th oct 2012 at 10:5pm weighing 4lb 7oz a quick in...

hartnell5

•11 years ago

22 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2012

funny head with heat type feeing

Where are my Christmas witches?????????

Faker/fraud no more

I have antiphospholipid syndrome. Is this Hughes Syndrome?

B12 deficiency

Anyone here have claw toes mine are just killing me the tendons at the back of my toes have shrunk

Need advise on moving doctors

i'm a baking

Still scared

Poor circulation

seen a hemo today waste of time and effort

sominex herbal

Latest Poll: Are you Right or Left Handed.... or Ambidextrous?

what tests are need to diagnose Hughes syndrome Please ?

When was APS discovered? I've had it for 26 years

Does having Factor V Leiden and Lupus Anticoagulant mean I have Hughes Syndrome?

Hi all , I first became ill about 8 - 10 years ago with all the simptons that pointed to sle Lupus , rash ,itching ,

Festive fun everybody

What is happening am I developing treatment resistance ?

IGM

Lupus

Lupus and fatigue

Before diagnosis

DWP tribunal

I found about Hughes syndrome, not yet diagnosed but know that this is the "why" i have been looking for. any help w/ getting started?

The light at the end of the tunnel has been temporarily turned off!

Disability Living Allowance - a very important petition for those in the UK

Research study: The syndromes of thyroid autoimmunity among patients with antiphospholipid syndrome

Mother vulnerable adult, victim of fraud and financial abuse, still ongoing

Success I've had a baby after heparin therapy

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