The light at the end of the tunnel ha... - Hughes Syndrome -...

Hughes Syndrome - APS Support

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The light at the end of the tunnel has been temporarily turned off!

InSpain profile image

Well after fighting numerous clots this year (here I refer not only to blood but Doctors too!), two strokes, intestinal bleeding, being in a coma, heart valve disease and chronic pain from osteoporosis and arthritis. I now have another unknown quantity to deal with – I’ve just been diagnosed with Atrophic Endometrium – which basically means that I will now probably need a hysterectomy to fight the cancerous growths that have been discovered in the lining of my uterus. Hey ho is there anything else waiting to hit me out there? Sorry to sound so negative but I’m really struggling to stay optimistic at the moment. I guess I’m just having an off day! Moan over folks – thanks for listening xxx

14 Replies

oh hon i am sorry. allow your self some time to get through this and then you will come back stronger than ever. much love to you x x x x

InSpain profile image
InSpain in reply to Flandy

Thanks ever so much. Your kind words mean a lot to me xxx

MaryF profile image

Sorry to hear about your ;plight, really I am and on a positive note... due to where this is located it is probably only localized and once out is gone...and actually you may feel an awful lot better after the shock of it all both physically and emotionally. I hope all your relatives and friends can pull out the stops for you. I am sending you positive vibes for a better 2013. Mary F x

InSpain profile image
InSpain in reply to MaryF

Thanks Mary. I agree with you. I'm a great believer in if you don't need it, and it doesn't work, then get rid!! And hopefully I will have a better quality of life afterwards as you quite rightly say. xxx

I am sorry to hear about all your problems. I do hope that the surgery goes well for you. I do know they can do it without an incision these days which is so much less invasive. I hope you have a good team of docs helping you. X

Hi hon,

So sorry you're going through this on top of everything else. I too had to go through the hysterectomy although for different reasons, it took a while to get over, but as APsnotfab says attitude does help, I remember getting told off for walking twice as far as I was supposed too, oooops never was any good at doing what I'm told.

I hope surgery goes well hon, keep in touch and let us know how you're doing.

Take care gentle hugs love Sheena xxxxx :-) :-) :-)

I am. ery sorry-it can be so scary. At 36, I had to have a hysterectomy 9 ys ago due to hemmorahging and ooperectomy 8 yrs ago, due to a cancer scare. They thought it was cancer. I had it 8 yrs ago. If I can help in anyway, pls let me know. Please take care!

Inspain, I to had a cancer scare in 1993. They grade you 1,2,3 and 4 is cancer, I was 3.5. They wanted to do a hystrotomy, but I wanted another child ( I was only 24). I had one child and really wanted another.They were able to get all the cancerous cells off my cervix through surgery and I was able to have another child.

Know they can do laproscpy surgery with little to no cutting.

Good luck and keep us posted. :)

Thanks for all the encouraging comments. I'm off today for some more tests and hopefully will be put in the picture a little more. I will certainly keep you all posted. Merry Christmas everybody. xxx

Sorry to hear your news. Sending lots of love and hugs to you, Keep strong and try to keep your sense of humour - that's all that got me through my troubles earlier this year! xxxxxx

Hand in there, In Spain, and remember we're all pulling for you.


sending you lots of love kathy xx

Hang in there. The tunnel is just narrowing a bit. After this the light will burst open. So sorry for all you are going through, but its never simple with us.. Good luck

Thanks for all your kind words. I'm feeling much brighter again today. I am now waiting for another biopsy which will determine my course of treatment. I think I will feel better when I actually know how we move forward from this. Love to you all from here InSpain xxx