When was APS discovered? I've had it for 26 years

[strawberryblonde]

[olleberj]

From the Hughes Syndrome Foundation website: "In 1983 Dr Graham Hughes and his team in London described in detail a condition - often known as “sticky blood”, in which there was a danger of thrombosis."

hughes-syndrome.org/overvie...

[Hidden]

Yes, 1983 was when the team in London first described it. Nigel Harris was a very important player in this discovery and Graham Hughes was leading the team he was in - he published the first papers about it in the Lancet in 1983.

[Hidden]

I don´t know how and when it started really. When my TIA or stroke came in 2002 and I was in hospital I had 3 types of antibodies. The neurolgist asked how I felt. I had high antibodies.They thought first it could be MS or SLE.I had no feeling in the right side of my body and face and even the tongue. Before this I had have AURAs. Lots of them, I once fell in the street not able to protect myself with my arms. This was in 2000. One week before that I had had a flight to Mexico for 13 hours. Back to Sweden in 10 days for 13 hours. I wonder what the trigger is........!? When I started Warfarin and most of the neurological problems disappeared I knew I had APS. Just before that I had read Sticky Blood Explained by Kay Thackray; side 55: "the vision in the lower half of one eye just disappeared completely, all I could see from halfway down my line of vision was grey." Then I understood and did what the doctors suggested and tried Warfarin. What a relief!

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One thing: I did not try Warfarin until 1011.I read the book in the beginning of 2011 when it was very difficult to read because of double vision. After the TIA I had Trombyl (swedish) and it helped the AURAS but in 2006 after the operation for Hyperparathyreodos it did not help any more.

[strawberryblonde]

Thanks for all your replies, drs really didn't know much at all when I was diagnosed but that was in 1986 and I'm in the USA