Hi all , I first became ill about 8 - 10 years ago with all the simptons that pointed to sle Lupus , rash ,itching ,,sunlight exposure ,ect ,the worst i think being fatiqued and aching bones during a flare but all blood test i have had ,so far are in normal range !!! I have been recently diagnosed with Sjogrens via a lip biopsy (as again bloods were in a normal range ) I have been told by dermy that I do have a type of lupus ,Cutainus Lupus and vasculitus , I also have Multi nodular Thyroid , I have just come back to work after being ill for 6 weeks felt and looked terible couldnt move, it hurt to much , chest infection and breathing on walking awfull loads of other things !!! I feel such a wimp t times ,I am on plaqunil which have been taking for a year , I do think they help , my GP has started me back on Steriods again .
I still think I have SLE but blood tests are all normal , where do I go from here ??