Here we go: Only 8 more members signing... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Here we go

MaryF profile image
MaryFAdministrator
7 Replies

Only 8 more members signing up and we will be '600'... not bad for such a short space of time!

M x

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MaryF profile image
MaryF
Administrator
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7 Replies
taffydaffy profile image
taffydaffy

Wow another 100 that was quick well done to you all your doing a great job x

7 more to go now! Will be reporting to the trustees this evening about the strength and numbers of our HU community :)

MaryF profile image
MaryFAdministrator in reply to

good good and goody x

paddyandlin profile image
paddyandlin in reply to

that is great hope it goes well?

SueLovett profile image
SueLovett

This is amazing especially as I witnessed a young doctor telling a medical student that APS is 'very very rare'! He also informed his young friend that it was 'something that caused tiny clots'!

I think I put him right on a few things but would have liked more time.!

I gave him a couple of handouts on Hughes which he grudgingly accepted and then placed on the desk without opening them. This arrogance holds us back.

Thank goodness for the Hughes Fondation and it's members for bringing it to people's attention.

Well done Kate and All x

Lesley_D profile image
Lesley_D

Amazing, and such a strong group full of caring people

Lesley

x

jessielou profile image
jessielou

Thats great. Mmmmm very rare condition. I think not!!!!

Love n hugs sheena xxxxx not:-) :-) :-)

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