I have made the appointment at last with our local paper: 'The Burton Mail'!!
I am right now jotting everything I want to say to them & hopefully I say everything needed!
If anyone has anything they think should be added or perhaps a short stort themselves have that could maybe be added? no names mentioned tho'.
I just want to help raise awareness as much as I can....if it means 1 area at a time I figured it all helps......a lot of us were found out later than we should have been with drastic endings or not listened to or taken seriously....if I can help spread the message that if you have the early symptoms keep pushing until you get the appropiate tests....I WILL!!!
Please help me any way you can,
.............................the persistant pain in the ass!!! xx
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Suzypawz
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o suzy -you have such a suttle way about you , i love it --- do you think the squirrel will drive them NUTS - or viseversa. where you come up with these pics is awsome. now is that pic going to paper also .--- the squirrel is missing combat boots????---------------------jet
Hi Suzy - email me at kate.hindle@hughes-syndrome.org so i can get your email address and I will send over our journalist's factsheet - it saves them having to wade through masses of literature/website materials. Also, please let them know that we have over 100 case studies who are happy to help
Hi all, well I wrote out an article for the Burton Mail, with info', symptoms, medications, short stories, websites etc also a disc with Hughes logos on it, they say it should go in a Sat' paper & should be 1-2 pages!!
I will show you a copy of it somehow if/when it goes in.
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