PSP Challenge

[Claptonfan]

My husband was diagnosed in 2021 after a lengthy investigation with memory clinics and hints of dementia. Two years on he has deteriorated physically but I would like to know if telling lies, saying yes when he means no and visa versa, fits of bad temper and much more is normal for PSP sufferers.

[carehope]

Hi ! Yes , these types of behavior/personality changes are very typical in some PSP afflicted people . Much more info can be found at PSP.org

[Wigwambob]

So typical. I call my husband Jim trott,from the Vicar of Dibley,who says yes yes yes....no!. We do laugh about it. The bad temper comes often from the frustration of not making himself understood but happily at the moment it happens rarely. My thoughts are with you.

[Jen295]

Hi , unfortunately Yes . My husband gets very angry at certain things and often calls an object by a different name. It's the anger I find difficult. He has visited a Parkinsons psychologist who has done some anger management exercises with him which have helped. Good luck. My husband was also diagnosed in 2021 having been treated for anxiety and depression.

[45purple]

Hi Claptonfan my husband says yes for no and no for yes I just try to make a joke of it but it’s very difficult. Angry yes he has that too but I think it’s frustration at not being able to say what he wants as he has limited speech. Just remember your not alone in this journey 💜💜

[Motts]

yes to all... I always tried to put myself in mom's position and knew I would act the same... many times I left the room or just bit my tongue. Sending Hugs... Granni B

[Claptonfan in reply to Motts]

Thank you

[LFG3]

Hello,

We found that 100mgs of Sertraline (generic Zoloft) works like magic to turn around the bad personality traits from this disease.

Angry outbursts, irritability, aggression all gone within a week on this medication. Back to his old, kind, sweet self. Helped us a great deal! Much easier to care for someone when they are nice! ☺️. Dosage might vary for people. My husband is a big guy. 6'2", 235lbs.

[Claptonfan in reply to LFG3]

Thank you. My husband is already on 50mgs Sertraline - perhaps it’s time to ask GP to increase the dose.

[LuisRodicioRodicio]

In our case, Sertraline 50 was sufficient throughout the entire process, but PSP is highly variable from one patient to another. I have read in this chat doses of 100 and 150. Yes, consult your doctor.

[pmcdonough1]

My husband had PSP and he was exhibiting some temper outbursts from frustration over the disease. He did on a couple of occasions not tell me the truth about minor things. I think it had to do with some cognitive challenges he was having. His doctor prescribed Bupropion an antidepressant. My husband would later be prescribed Donepezil for brain function which was like a light turning on in his head. Donepezil helped with mental function, swallowing and sleeping. Sending my best.