I seem to be writing a lot this week, I’m sorry if I’m bothering anyone.
My husband has started breathing really hard and fast when ever he does anything. He was breathing so hard that I called the hospice nurse. She recommended that I give him a small dose of morphine. Yes it helped but I worry about giving him morphine.
Don’t apologize that’s what we are here for. I understand your concerns. We all learn to become health professionals on the job. I never knew what I was doing. All you can do is your best.
True story there, Jeff! It was a learning process, for sure. Part common sense, part prayer. As long as everyone made it through the day without injury, we’d call it a success.
And you certainly did your best for Larry.
We're here because we want to help, so please carry on bothering us, this is what this site is all about.
Mum used to suddenly start panting, quite often during meals. Our Community Matron said Mum was only breathing in the top of her lungs and this meant she wasn't getting alot of oxygen and then she would"pant" which was a way of getting more oxygen. Would pass after 5-10mins.
What's the saying "Love means you never have to say you are sorry!" Nothing is EVER a bother on here. We are or have been in the same sinking boat, none of us can fix the hole or know how to bale out. Everyone of us knows the lost feelings you are going through. That's why this site is so wonderful, none of us are alone, we are in this together, sharing our experiences, shouting and screaming at the injustice our loved ones have to suffer and the pain and sorrow we go through.
Penny, I am sorry, Steve never had this problem, perhaps others will be able to help. Please, Please never think you are a bother, your problem is OUR problem. Bother away!
Sending big hug and much love
Lots of love
Anne
Hi it’s not a bother, we are all here for each other, my husband didn’t have this problem, but with PSP new things are send to stress us, keep posting it really does help. Yvonne xxxx
I have had this problem for sometime now. A pulmonary function test showed that my lungs were getting enough oxygen but the the muscles responsible for breathing are working at far less than their capacity. If it's at all possible, get a referral to a respirologist to have the test. There is not much than can be done, but you might take some comfort in knowing what the problem is.
Tim
My Margaret is having a similar breathing problem particularly associate with eating and any excursion or stress. She ‘pants’ (or laboured breathing) for a short period then it calms down. We have just been to see a ‘Respiratory Specialist’ because our PSP specialist, admittedly during a telephone consultation, said it was not a typical PSP symptom. The Respiratory Specialist said it was a manifestation of a breathing pattern disorder or dysfunctional breathing whose source was difficult to determine but could be associated with PSP. Like PSP the outcome is not good and cures are not exactly thick on the ground but one thing that might help are Buteyko breathing exercises but these exercises, if they have any effect, can only make small changes over a long period. Hope this helps. Everybody's PSP journey is different but keep smiling, keep loving and above all fight. Alan
My late husband had extremely loud breathing,pretty much all the time for his last year or so on this earth. Sorry to say I never got any answers for it. When I would present the problems to the Dr. they would treat him for COPD,which I never felt was accurate.
His breathing was so loud that I have seen people in a restaurant asked to be moved to another table rather than sit near us. And once he was put into a nursing home,his roommate asked to be moved because of it.
His every breath was more like a loud groan. Wish I could help you with answers,I hope you can find some!
My husband did that occasionally too, I thought he was hyperventilating. He had both PSP and congestive heart failure. We had oxygen available so we always gave him oxygen for awhile when he did this. I just thought it was from his CHF. Maybe not?
Pat
morphine don;t help me
Respite report
End-of-life
