“Dad loved his holidays and had a real sense of wanderlust. People worry if they can still go abroad with PSP, with some planning it is possible.
"We researched disabled facilities and packed packages of food, including powdered custard, noodles, cake bars and basically anything he was used to eating at home, including his thickeners. We planned each trip with
Dad’s routine and capabilities in mind.
"In Oman, we booked a disabled room and contacted the hotel before we left. With the advance notice the hotel was extra helpful with Dad. We also planned trips with rest stops so he could nap and we avoided overnight
flights. Wheelchair assistance at the airport is a brilliant service and worked really well."
Read more about Nadia's experience of PSP and her family travels, in the January 2019 edition of PSPA Matters. Head to pages 10 and 11.
My Dad has gained his Angel Wings
hi everyone need some advice my sister and me are pulling are hair out this last 10 days,dad had psp about 3 years which in his case is 
How long has you or your loved one had PSP?
Can anyone help/advise me? My dad was diagnosed with PSP 2 years ago we have seen a marked deterioration in his health since Christmas
