I haven't been on the site much for a couple of months. Even with this Covid business, I've been busy taking care of things. There is a lot to deal with after losing your husband.
This is a sensitive topic but I want to share about my husband's brain donation. I wrote about this before but want to add information from his neurologist. My husband made the decision to donate his brain and we used Brain Support Network, here in the U.S. This enabled our family to get an accurate diagnosis and it turns out he had CBD, not PSP. The diseases are so similar that it's so hard to differentiate. Also, this donation will further research.
I had a discussion with the pathologist as well as my husband's neurologist. The neurologist wants to raise awareness around brain donation. This is the only way they can make any discoveries about these diseases. Currently 2 out of 100 people do these donations so unless this greatly increases, we're going to be in the dark on this for a very long time.
I realize this is a delicate subject and that all the caregivers are going through a very difficult season. Let me know if you want more information on this.
All the best to all of you.