Thanks to everyone for your advice

[acorneater]

It's so difficult to control what is going on when there is no admissions allowed in the nursing home.As I said in my last message I have not seen her since the first week of March but managed a little "face time" yesterday.She has lost so much weight which makes her look ten years older.I have not been told that swallowing is the problem,but all the staff are so busy there is not always the time to speak to the right person.I have suggested trying her with soup and high calorie drinks to the carers .

It maybe that she has given up, she can't communicate her feelings very easily to those around her.Hopefully she is now over her latest water infection ,I am waiting for her nurse to phone me.Everybody there is in a low mood with no idea when they will see loved ones again.It is so easy to point the finger at those responsible for bringing the world to it's knees,but trying to deal with P.S.P. is more than enough to have on your plate.

Thanks again for all your replies,Acorneater.

[honjen43]

Would guess she has been given Complan as an alternative to high calorie drinks. Have tasted both and hi-cal ones are 'foul'! Hubby refused them with a grimace so I tried one and agreed! Complan is as good in circumstances.

Am so sorry for the predicament you are faced with. All you can do is talk to her nurse when she rings.

I would be inclined to agree with your own thoughts. Doesn't sound like anyone there has a good outlook on life!

Try and get some more Facetime if you can bear it, and keep trying to get special dispensation to see her!

I think Kevin may have got in to see Liz, but permits may be different in some areas.

Thinking of you, and praying for you both.

Hugs

Jen xxx

[HilsandR]

This virus has made life so darned difficult for everyone, especially those on the front line whose jobs are now doubly hard. As Jen said, push now for a special dispensation to see your wife, so you can at least get a clearer picture of the situation, e..g. is she not eating because she struggles to feed herself and the staff are too busy to assist? As long as all the precautions are taken for a visit then I’m sure it can be made doable. Not sure which part of the country you are in but infection rates in different areas vary considerably, some having next to none, so you may be in a low risk area. I do of course respect that the first priority for care homes is to keep their residents safe as they are amongst the most vulnerable, and if exceptions were made for everybody then there’d be no rules at all, but some situations surely warrant a little relaxation.

My heart really does go out to you; dealing with PSP is bad enough without the added kick in the teeth from the virus preventing folk from being with their loved ones - absolutely heartbreaking.

Please let us know how you get on.

Hils

[Hidden]

My heart really does go out to you both.I take it your wife has been (re) referred to a nutritionist/dietician since going into the home ? x

Always here

[acorneater in reply to Hidden]

Thanks for being there,I have picked up drinks and soup from the chemist which I shall drop off for her tomorrow with some chocolate deserts.On Monday I shall be speaking to her nurse to get an update in regard to all her problems.Will leave a message on the forum when I get some answers.Acorneater

[Hidden in reply to acorneater]

Remember to take care of yourself too. Sending hugs... Granni B

[daddyt]

Prayers. Hoping for the best.

Tim x