Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2019

Very confused tonight

Well, my husbands memory is quite terrible. Tonight he was sure I cheated on him because I was married prior to meeting him and had a little boy. The little...

Well, my husbands memory is quite terrible. Tonight he was sure I cheated on him...

•5 years ago

Do I have PSP? What else?

I live in India where the awareness of PSP is very low. With the exception of (1) early falls and (2) Vertical eye movement, the two important factors of PSP,...

I live in India where the awareness of PSP is very low. With the exception of (1...

•5 years ago

Lobster it is ...

This was a real treat, of course it looks beautiful in the picture -- but, you all know what happened next ... I cut that sucker into the smallest of pieces...

This was a real treat, of course it looks beautiful in the picture -- but, you a...

•5 years ago

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Anchors away ...

This was our first photo of the week on board our ship --- Momma wearing her anchor shirt, ready for a great week of cruising! Bless her heart, she has...

This was our first photo of the week on board our ship --- Momma wearing her anc...

•5 years ago

We give Praise ...

She may be physically challenged, but as long as she can raise those arms ... Momma is so grateful , and gives Praise & Thanksgiving!

She may be physically challenged, but as long as she can raise those arms ... Mo...

•5 years ago

The perfect spot ... Bon Voyage!

This has been an amazing week aboard the Symphony of the Seas on Royal Caribbean! This is her first choice in the morning, on our private balcony, sipping...

This has been an amazing week aboard the Symphony of the Seas on Royal Caribbean...

•5 years ago

US alternative to convenes?

We are just starting to need night time urine protection. Hubby is uncomfortable with even fitted depends, and I'm tired of stripping the bed in the morning...

We are just starting to need night time urine protection. Hubby is uncomfortab...

•5 years ago

How much sleep?

I understand that as disease progresses, sleep time increases as well. My husband has CBD. I got a text at work yesterday from his carer telling me that he...

I understand that as disease progresses, sleep time increases as well. My husban...

•5 years ago

Tubes out again

I could brain him 🤬

I could brain him 🤬

•5 years ago

Swallowing problems - snack food recommendations

Hello everyone. Mum is currently thinking about a Peg and all that comes with that decision as her swallowing deteriorates. In the meantime we are trying to...

Hello everyone. Mum is currently thinking about a Peg and all that comes with t...

•5 years ago

First time in hospital for craig

Craig was taken into hospital on Wednesday last week with pneumonia. He is nil by mouth and has had 3 NG feed tubes fitted and pulled all 3 out and now on his...

Craig was taken into hospital on Wednesday last week with pneumonia. He is nil b...

•5 years ago

Right place at right time

If you look close there is a rainbow behind the trees and as luck would have it I am actually above the rainbow. My luck ran out about half hour later as I...

If you look close there is a rainbow behind the trees and as luck would have it ...

•5 years ago

Another big adventure!

Sandy has a wonderful power wheelchair (with attendant controls for me). His wife is an official backseat driver (every man's dream). He can't handle it...

Sandy has a wonderful power wheelchair (with attendant controls for me). His wif...

•5 years ago

I'M FINE!

Ok, we have all said it. Being fantastic actors that we are, even meant it, well sort of. You know the scenario, " how are you Heady? I'm fine", said she,...

Ok, we have all said it. Being fantastic actors that we are, even meant it, well...

•5 years ago

PSP information cards

I ran across some very old posts mentioning PSP cards. Apparently there are little cards made that explain PSP in a nutshell to hand out when needed, rather...

I ran across some very old posts mentioning PSP cards. Apparently there are litt...

•5 years ago

Autumn arriving

The fingers of Autumn are already encroaching on my Devon countryside . The horse chestnuts’ leaves are rusting on their branches and the spiky fruit will soon...

The fingers of Autumn are already encroaching on my Devon countryside . The hors...

•5 years ago

A Seizure?

In the middle of the night I heard Larry through the baby monitor making strange sounds. Got up and went into his bedroom. He seem to be having a “seizure” of...

In the middle of the night I heard Larry through the baby monitor making strange...

•5 years ago

Advice taken ... no time like the present

Bon Voyage! Last minute booking on a cruise ... I figure this will be a great distraction, and might as well do it while we can! Mom is all smiles ... yes,...

Bon Voyage! Last minute booking on a cruise ... I figure this will be a great di...

•5 years ago

I did it

I finally bit the bullet and courageously asked a close family member to help out for one week, not until next April, so that I could plan a get away for...

I finally bit the bullet and courageously asked a close family member to help ou...

•5 years ago

Ambulance trip

Mum got rushed into hospital with urinary sepsis on Friday following a 2 week uti.

Mum got rushed into hospital with urinary sepsis on Friday following a 2 week u...

•5 years ago

C4 documentary

Hi All I have been approached by the producer of the attached documentary today via Twitter. He sent me lots of info & this documentary sounds to me will be...

Hi All I have been approached by the producer of the attached documentary today ...

•5 years ago

Reflecting ...

4 years ago ... This is a picture of Mom and I after one of my shows; doesn’t she look beautiful? Moms role was taking care of all merchandise ... she...

4 years ago ... This is a picture of Mom and I after one of my shows; doesn’t sh...

•5 years ago

open mouth

My husband has PSP for 6 years . This morning he woke up with a locked jaw his mouth is wide open and I can not close it. Has any body experience something...

My husband has PSP for 6 years . This morning he woke up with a locked jaw his m...

•5 years ago

A Dinner Party!

Last night Larry asked me a question. After several attempts at understanding what he was saying I got it. He was asking me if we should invite Jessica, the...

Last night Larry asked me a question. After several attempts at understanding wh...

•5 years ago

Find Your Tribe...

You are my tribe!

You are my tribe!

•5 years ago

Trusting the journey

Thank you everyone for your encouragement — your words and guidance mean the world to me! I am giving it all I’ve got and I know where my strength comes from....

Thank you everyone for your encouragement — your words and guidance mean the wor...

•5 years ago

New Symptoms

Had a very stressful week, John has had 6 episodes last week, all slightly different, but mostly passing out when coming round left side of his face has...

Had a very stressful week, John has had 6 episodes last week, all slightly diffe...

•5 years ago

Memory Bear

My friends husband died of Lewy Body. She gave me his favorite sweatshirt and I made this for her.

My friends husband died of Lewy Body. She gave me his favorite sweatshirt and I ...

•5 years ago

Trying to find the joy...

So it’s been a tough few days ... and I am typically all about staying positive, but we are all human, right? Mom has a “glazed” look the last few days ... it...

So it’s been a tough few days ... and I am typically all about staying positive,...

•5 years ago

Is there any support groups in Colorado, USA?

Are any support groups available in USA?

Are any support groups available in USA?

•5 years ago

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