PSP information cards: I ran across some... - PSP Association

PSP Association

9,658 members11,568 posts

PSP information cards

journeyofjoy profile image
8 Replies

I ran across some very old posts mentioning PSP cards. Apparently there are little cards made that explain PSP in a nutshell to hand out when needed, rather than try to explain all this to doctors or others.

Does anyone out there know about this and how we go about getting some of these?

Thank you friends!

Written by
journeyofjoy profile image
journeyofjoy
To view profiles and participate in discussions please or .
8 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Get in touch with PSP society they will send you some x

kenh1 profile image
kenh1

I received mine from PSPA phone no. 01327 322410 They are very helpful. Best wishes Ken.

I emailed requesting the cards & they were very helpful.

Javan profile image
Javan

The PSPA site has lots of information that can be downloaded.

ncgardener799 profile image
ncgardener799

Contact CurePSP.org and they can help you get information that you can hand to Dr's.

rnpacu profile image
rnpacu

I received my card from cure PSP web site along with other information on PSP . for a small donation. I use the card when I go to a dr. who doesn.t know anything about the illness.

Maria Elena

Ratcliffe profile image
Ratcliffe

David used to wear at his own request a laminated card around his neck which read something like:

My name is David, I suffer from PSP. I cannot speak, stand, balance, swallow or walk.

In emergency contact Derek on xxx

My GP is Doctor x on xxxxx

Thank you.

It was his call, and we didn’t know there was an official card, but somehow this gave him a bit better sense of security, especially when he was in the home when I was away on respite leave.

journeyofjoy profile image
journeyofjoy in reply toRatcliffe

I would think it would give him a sense of security. I would be terrible to not be able to communicate and not have others know your situation.

Not what you're looking for?

You may also like...

PSP Information Cards

Hi everyone As we all know on this site, it is extremely difficult to explain to people what PSP...
SuzieQ profile image

PSP Information Cards

I bought PSP information cards and have nine of them to give to someone who would like them. I am...
Sugardart profile image

How can I contact the PSP On-line Shop to order some PSP Information cards?

I have been diagnosed with PSP. I read Suzie Q's posting about the PSP Information Cards...
barnett910 profile image

PSP Fact Cards

We are getting a lot of queries about the PSP Fact Cards. If anyone is interested in getting some,...
PSPA_DebbieB profile image
Partner

The Little PSP cards

I have avoided reading and writing blogs for the last couple of weeks, in part due to quite a large...
Peter2 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.