Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2019

Made a memory

Made the most of a sunny, though breezy afternoon and took Mum to Quarrybank Mill gardens near Manchester Airport. Though a lot of the site is very steep and...

Made the most of a sunny, though breezy afternoon and took Mum to Quarrybank Mil...

AJK2001

•5 years ago

8 Replies

Can you get to Macclesfield?

Just to let you know/remind you that the next meeting of the PSPA support group is taking place at the Sunflower Centre at The East Cheshire Hospice,...

Just to let you know/remind you that the next meeting of the PSPA support group ...

AJK2001

•5 years ago

1 Reply

Conversation cards ...

This has been such a fun experience ... conversation cards bring out stories I have never heard before! Today, one of the cards had a picture of "Saddle...

This has been such a fun experience ... conversation cards bring out stories I h...

bazooka111

•5 years ago

7 Replies

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Progressive Supranuclear Palsy or PSP

I was diagnosed with Progressive Supranuclear Palsy in January of this year after a broken bone in my pelvis that lead to a hospitalization where they...

I was diagnosed with Progressive Supranuclear Palsy in January of this year afte...

slombardi

•5 years ago

8 Replies

Finally some good news!

A while back I posted that my son wanted to do genetic testing. My husband has FTD, PSP and CBD. His disease is not caused genetically as far as the science...

A while back I posted that my son wanted to do genetic testing. My husband has F...

susantigner

•5 years ago

3 Replies

I love you

Emotional day. I look for the JOY every single day, and try very hard to bring that joy to the surface for my sweet Momma as best I can. I was watching her...

Emotional day. I look for the JOY every single day, and try very hard to bring ...

bazooka111

•5 years ago

18 Replies

What are the stages of psp?

End of life stage of PSP. How do you know what stage your loved one is in?

Moojuice219

•5 years ago

11 Replies

It didn't work

Took the dog on my hike, she's a Goldendoodle, to wear her out. Only thing that was wore out was me. Ron

Took the dog on my hike, she's a Goldendoodle, to wear her out. Only thing that...

Dadshelper

•5 years ago

11 Replies

Sweating/Clammy

Is this common with PSP? Should we be concerned about infection or fever? It seems like my friend is often sweating and clammy. Also, does the fatigue just...

Is this common with PSP? Should we be concerned about infection or fever? It s...

Mybeautifulfriend

•5 years ago

17 Replies

White knee caps

Hi my brother Larry has had PSP going on 9 years at this point he is only up in his wheel chair couple hours in the morning and a couple hours in the...

Hi my brother Larry has had PSP going on 9 years at this point he is only up in ...

Tttp

•5 years ago

4 Replies

Azp2006 trials for PSP

Has anyone been to the azp2006 clinical trials for PSP? Just wanted to get information if at all there is any light at the end of the tunnel...

Has anyone been to the azp2006 clinical trials for PSP? Just wanted to get infor...

abehanan123

•5 years ago

10 Replies

In Hospice as of now.

My second attempt at setting up palliative/hospice care happened yesterday with a visit from the intake nurse from the new agency. She told me when she was...

My second attempt at setting up palliative/hospice care happened yesterday with ...

Hidden

•5 years ago

46 Replies

Swelling

I've been asking so many questions lately. So thankful for this community. Latest one: Sandy's left hand (the one that doesn't work so it doesn't get used) is...

I've been asking so many questions lately. So thankful for this community. Lates...

journeyofjoy

•5 years ago

6 Replies

Thanks, Jillann!

First, Thanks to Jillann for liking a reply I'd made to a post called: Message from Peter Jones. It made me look. Thank you, Jillann! I so enjoyed...

First, Thanks to Jillann for liking a reply I'd made to a post called: Message f...

easterncedar

•5 years ago

13 Replies

Skin issues with PSP?

Sandy has had dry flaky skin the last several months (he always had dry skin but now comes off in flakes and his clothing sometimes looks like he's been in a...

Sandy has had dry flaky skin the last several months (he always had dry skin but...

journeyofjoy

•5 years ago

12 Replies

Making Memories

We had a beautiful family picnic today, and the best surprise is all over Momma’s face! We pulled together multiple t-shirts that my Dad used to wear, and my...

We had a beautiful family picnic today, and the best surprise is all over Momma’...

bazooka111

•5 years ago

7 Replies

New Life

Not a PSP/CBD specific post, but rather a distraction for some of you in the midst of this cruel disease, and of my healing after the loss of a loved one to...

Not a PSP/CBD specific post, but rather a distraction for some of you in the mid...

Beads0122

•5 years ago

15 Replies

Happy Birthday moments

This picture has a deeper meaning ... this is my Moms youngest grandson, Jesse; he just turned 9 years old. I bought my mom a greeting card kit, so she...

This picture has a deeper meaning ... this is my Moms youngest grandson, Jesse; ...

bazooka111

•5 years ago

18 Replies

Support group

Any support groups in India? I live i Chennai and am a patient myself

dethiraj

•5 years ago

4 Replies

Right decision

I have used this site for advice but perhaps I'm not known. I have contemplated having my Mum home with me for many months. Split opinions but I decided it...

I have used this site for advice but perhaps I'm not known. I have contemplated...

eurolynch

•5 years ago

18 Replies

Trying Sinemet

Amazing how you can get different diagnosis from a new neurologist and start down a new treatment path with optimism. This neurologist is all for Carbidopa...

Amazing how you can get different diagnosis from a new neurologist and start dow...

Debspottery1

•5 years ago

6 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2019

Made a memory

Can you get to Macclesfield?

Conversation cards ...

Progressive Supranuclear Palsy or PSP

Finally some good news!

I love you

What are the stages of psp?

It didn't work

Sweating/Clammy

White knee caps

Azp2006 trials for PSP

In Hospice as of now.

Swelling

Thanks, Jillann!

Skin issues with PSP?

Making Memories

New Life

Happy Birthday moments

Support group

Right decision

Trying Sinemet

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive