C4 documentary : Hi All I have been... - PSP Association

PSP Association

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C4 documentary

Spiralsparkle profile image
11 Replies

Hi All

I have been approached by the producer of the attached documentary today via Twitter.

He sent me lots of info & this documentary sounds to me will be handled sensitively to all involved.

My situation with Mum is still complete estrangement or else I would have given her the opportunity to take part if she wanted to.

This is a sensitive subject , we are all living it at various stages. To have a message from Mum would be priceless to me.

I wanted to share the opportunity with you all here. I apologize though if this causes you upset, that is not my intention at all.

If you do decide to contact them to find out more pass on my name Sam Youngz.

Best Wishes to you all

XXX🤗🤗🤗

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Spiralsparkle profile image
Spiralsparkle
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11 Replies
SewBears profile image
SewBears

Interesting. Most loved ones on here cannot speak and no one knows if they have 12 months or 12 years left. I didn’t find this upsetting but I do think that it would be difficult to get a message across because of the illness. If that makes sense?

Spiralsparkle profile image
Spiralsparkle in reply to SewBears

Yes I understand some cannot speak, there are some that can. Prognosis is difficult to predict also but wanted to share as it may be of interest to just one family on here.

Satt2015 profile image
Satt2015

Fantastic idea! Hope your doing it Sam! X

Spiralsparkle profile image
Spiralsparkle in reply to Satt2015

No unfortunately not as nothing changed with Mum & me being able to see her

Nanny857 profile image
Nanny857 in reply to Spiralsparkle

I'm sorry Spiralsparkle things haven't improved for you. Keeping you in my thoughts. Thanks for sharing details of documentary and I didn't find it upsetting.

Lots of love Nanny857xx

Spiralsparkle profile image
Spiralsparkle in reply to Nanny857

Thank you for taking the time to reply. Hugs to you xxx

The weirdest thing about people with PSP, CBD, MSA and Lewy Body disease is none of them look sick.

I am cautious when it comes to television reporters...

They can slice & dice your statements. Sending hugs & hoping for the best for you. Granni B

bazooka111 profile image
bazooka111 in reply to

Agree

Spiralsparkle profile image
Spiralsparkle in reply to

I am also very cautious due to own experience this year. I wouldn't have shared this if I thought it was not going to be made from the right morals.

From my own training this year re grief and death. I'm all for changing the stigma and taboo about talking about death in society. Grievers are isolated and majority of people won't talk about it or avoid you.

cameoboy11 profile image
cameoboy11

Thanks!

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