Friday afternoon

Things got screwed up with the massage therapist who was to come Friday afternoon. When I talked to her to set the time it bounced around a bit. I chose 1:30. She remembered 3:30.

Getting home from errands at 11:30 I had time to lay down. Got up at 1:10 thinking she would be here soon. Larry has also decided to take a nap. Went in and got him up.

At 2 o’clock when she hadn’t shown I tried looking in caller ID to see if I could find her number. Didn’t find it. Went out to the kitchen to finish prepping the basil I bought today to grind it with oil and freeze it for use this winter.

Just got started when there was a knock on the door. Thought it was the therapist. Opening the door it was the police with a report of a disturbance at our address. No idea where that came from. I think in my attempt at looking for the massage therapist number in caller ID I somehow activated something. The police said a disturbance was heard on the phone. Larry was watching NCIS Los Angeles. There is usually a shoot out and lots of screaming on the show. Somehow someone heard it and thought it real. I have no idea what happened. Convinced them we were OK.

Then I called the Hospice to tell them I thought the therapist and I had different ideas when she was to be here. Shortly after hanging up the therapist called. I rescheduled for next Friday.

[honjen43]

Oh dear! At least Larry was watching TV and was not the cause of the disturbance!

Maybe an early night tonight!

Hugs

Jen xxx

[Hidden in reply to honjen43]

Every night is an early night.

[journeyofjoy in reply to Hidden]

You are wise to get to bed early. I am in a bad habit of staying up too late. By the time the day is done and I have some time to myself, I don't want to go straight to bed. I really need to change this habit.

[Hidden in reply to journeyofjoy]

Larry got up today at 2:20 AM. I went back to bed until 4:45. By 7 PM I am usually beat. I have only gotten to getting prone on my bed for my nap. I may get to be here for an hour and a half then it’s back to work.

[journeyofjoy in reply to Hidden]

Having your sleep interrupted makes everything so much harder. I have it good, I guess. Sandy generally is in bed around 9pm (with the tv going), and doesn't get up until 7:30 or later (sometimes as late as 9:00 or so). He seldom wakes me up in the night so I get a good night's sleep. I hope this pattern continues...forever.

I'm sorry you don't have relief from this. You're a good caregiver.

[Hidden in reply to journeyofjoy]

It the erratic pattern that is maddening.

[doglington]

There's no such thing as an easy day !

X

[Hidden in reply to doglington]

I was a curve ball I was not expecting. I have no idea what I did with the phone to make it open the line and leave it open.

[Heady]

Sorry, but this made me giggle. The thought of someone hearing a TV programme and calling the police. I am sure it wasn't funny at the time, but still a good story for the dinner table!!!

Glad to hear that you are managing a little rest, diary organisation is very important, make sure there are a few rest days each week, where YOU do nothing, except what is necessary. Perhaps then you could be sat watching NCIS and not frightening the police responders!

Sending big hug and much love

Lots of love

Anne

[Hidden in reply to Heady]

I makes for a good story which is why I posted it. One never knows when the absurdity of this disease will strike and how.

[NannaB in reply to Hidden]

Like Anne I chuckled out loud when I read about the disturbance. I know the rest of the day was frustrating but that bit was funny......to those who weren’t there. Now I know what to do if I ever need the police for something they won’t think urgent. XxxX

[Dadshelper]

Wow! What an experience. I wonder if somehow you activated a 911 call? That is the only reason I can think for the police to come check over something heard from the phone. I remember when my son was little and he was playing with the phone, I wasn't watching close enough I guess. I hung up the phone not knowing he had dialed anything. 10 seconds later it rang, person was a 911 dispatcher calling to see why a call had been placed but then hung up.

Ron

[Hidden in reply to Dadshelper]

No idea what or why it happened. I was scrolling though caller ID which I have done any number of times in the past. Why this opened the line and kept it open is a mystery to me.

[NannaB in reply to Dadshelper]

The same thing happened with my then 2 year old grandchild and the caller kept me on for ages asking loads of questions just in case I was keeping someone from calling for help. She even wanted to speak to the caller but didn’t get much sense out of him. She then said I should make sure he didn’t do it again. He was sitting on my lap at the time while I was doing something on the computer but I hadn’t notice him dial the phone next to me. He didn’t do it again but his younger brother did, several years later. Boys will be boys!

XxxX

[Hidden]

Sending hugs & an apology for giggling a bit at your Friday Adventure... Granni B

[Katiebow]

You always manage to add humour in your posts in the face of adversity, always a comical slant on proceedings. I think you should have laid on the bed and had a massage ofter all that drama.

Love Kate xx

[Hidden in reply to Katiebow]

i Try to find the humor in this to keep my mind together. Doesn’t always work.

[journeyofjoy]

A day in the life of a PSP caregiver. The police inquiring about a disturbance is the icing on the cake. The police showed up at our door one day - I hit "redial" on one of our phones to call someone but apparently 911 was the last call made from that particular handset. At least they knew it was a misdial and didn't question me about a shoot out!

I hope you got an extra nap that day. By the way, what's your recipe for pesto? And how do you have time to make your own? I used to but now I buy it ready made. My cooking has gone downhill.

[Hidden]

I don’t make pesto I just grind the basil with olive oil then freeze it into ices to pull out and thaw it when I make something that wants fresh basil in it.

I still cook to eat what I want and make things I know Larry will be able to eat. I have to chop what he gets to a size he can swallow with little effort.

[Marilyn_cbd12]

Jeff, these situations are confusing, aren't they? This June, police showed up at our home, under similar circumstances. At the time, my husband said he had not made the 911 call, so we thought that the home health aide had called them, since the call came in while she was "on duty." I called her employer and consulted with our health care team. Aide denied making the call. Next day, my husband admitted that he had made the call though he couldn't remember why. I was very concerned that perhaps he felt threatened in some way by the health aide, but he claimed he didn't though he still couldn't remember why he made the call. I continued to think that a threatening situation provoked him, though I could not prove it. Still haven't figured it all out, but did terminate the aide -- felt that he should not be making unsupervised calls when she was being compensated to watch over him.

We have almost given up on getting a good home health aide. The next one forgot to give him his medication, so we dismissed her and the one after that brought....bed bugs!!... into our house, which was a nightmare to treat. For six weeks, we have been aide-less, but it has been more peaceful--

Marilyn

[Hidden in reply to Marilyn_cbd12]

I find the more help I am getting the more I have to accommodate other people. Every day someone else is now deciding when I can do things. I have to work around their schedule.

I haven’t done a home aid for some of the reasons you mentioned. This is a lot for anyone to come in cold and deal with. I’ve had 4.5 years of this growing slowly to adjust to what needs to be done.

[Caro2132 in reply to Hidden]

I hated the idea of an aide. I was superwoman and obviously strong enough to do it myself. Mike was diagnosed PSP in 2017 and after six months on my own, I caved and got an aide twice a week for 4 hours in the morning. We’ve increased now to four mornings a week and an occasional evening. I can’t tell you what a relief it is to have someone else do the heavy lifting and feeding and bathroom tasks. I’ve changed agencies three times and had to fire one aide but it’s worth it. You should try it, if you haven’t already and if you have already, try again. Honestly I don’t see how any one can do it all on one’s own.

Caroline

[Hidden in reply to Caro2132]

I will get there eventually but as long as I can do it I will. The plus is the help the downside is having to accommodate other people.