9+ years of brave-fight ended last month! - PSP Association

PSP Association

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9+ years of brave-fight ended last month!

arinkb profile image
arinkb
β€’35 Replies

Hello All - this is just to thank all of you here for your support to me which helped my mom run with CBD for 9+ years of slowly acquiring this clinically-incurable disease. She fought long and hard and persevered with a brave heart. She smiled as much as she could, till about a few months prior. She would be 67 today!

I'm happy to be a son to such a happy woman who did much more than she could for anybody she came across. I'm all because of her and my father's complete-dedication in bringing up their son.

Cheers and take care. Feel free to reach out to me for any kind of support - glad to be of help.

Thank you!

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arinkb
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35 Replies
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Dadshelper profile image
Dadshelper

It sounds like she was a fantastic mother. You and your family have my condolences.

Ron

arinkb profile image
arinkbβ€’ in reply toDadshelper

Thanks so much for your kind words... Ron! Very appreciated!

doglington profile image
doglington

I know how it's a mixture of relief and loss. My husband also was called Smiler by the carers.

We have to hold on to the privilege of knowing such special people who have left so many memories.

Love from Jean x xx

arinkb profile image
arinkbβ€’ in reply todoglington

Correct Jean! Thank you for sharing my feelings...

Heady profile image
Heady

So sorry for your loss. May your Mum rest in peace, finally free from this evil disease.

Sending big hug and much love

Lots of love

Anne

arinkb profile image
arinkbβ€’ in reply toHeady

Thanks a bunch... Anne!

I do hope though that this disease is either eradicated or becomes easily curable pretty soon... with advancements in medical technology... should not be too far off...

Heady profile image
Headyβ€’ in reply toarinkb

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raincitygirl profile image
raincitygirl

Condolences to you in the loss of your mother. I hope she is flying free beyond all pain and suffering. Bless you for your 9 years of love and care. XXX

Anne G.

arinkb profile image
arinkbβ€’ in reply toraincitygirl

Yeah Anne.. hope she is happy up there but she must be missing us... :-)

Melhukin profile image
Melhukin

Sorry for your loss x

arinkb profile image
arinkbβ€’ in reply toMelhukin

Thanks!

Katiebow profile image
Katiebow

She sounds as if she was a wonderful lady, adored by her sons and others around her. A great legacy, she must have been proud of her son's. She is now free of this terrible disease after her long struggle.

Sending love

Kate xx

arinkb profile image
arinkbβ€’ in reply toKatiebow

Yeah she is free but we recall her in our memories almost everyday :-)

Thanks a lot for your wonderful words... Kate!

Inparadise profile image
Inparadise

So very sorry for your loss. I wish that I could have had the opportunity to meet your mother and to get to know her, as she was a wonderful and vibrant person.

Prayers to you and your family.

arinkb profile image
arinkbβ€’ in reply toInparadise

Thanks a lot... [sorry didn't catch your name]! Yeah, she would have been glad to see you too...

connc profile image
connc

I am so sorry for your loss. My deepest condolences.

Connie

arinkb profile image
arinkbβ€’ in reply toconnc

Thanks Connie!

DenB profile image
DenB

So sorry for your loss.

Your mum sounds like she was an amazing woman.

I too lost my husband to CBD back in July.

We would have been married for 42 years next week and he would have been 63, a couple of days afterwards!

Two first anniversaries without him, already!

I miss him very much.......

Love to you and family

Take care

D X

arinkb profile image
arinkbβ€’ in reply toDenB

Thanks D S! Yes, these dates sort-of bring some pain back. Your husband was only 62 when he left!! such a young age to leave!

Yeah you have to move on recalling the wonderful 42 years you spent together... kudos to you and your husband... both of you seem to be wonderful people... God Bless!

AJK2001 profile image
AJK2001

Thinking of you xxx

arinkb profile image
arinkbβ€’ in reply toAJK2001

Thanks!

catherine_h profile image
catherine_h

sorry to hear about your mum, she sounds like a wonderful lady, but it also sounds like she will always be present in the person you have become. you will forever be proud in what you have done for her. i am in the midst of it here, caring for dad, but knowing the dedication they showed me keeps me going.

I hope you get to rest now and are able to remember all the wonderful times yr shared, she is at peace xx

arinkb profile image
arinkbβ€’ in reply tocatherine_h

Thanks a lot Catherine!

Proud of you for doing what you are doing for your dad... yes it should be natural but lot of people don't think so, unfortunately! Keep on keeping on - someone is watching from up above and blessing you... and we all here are cheering for you and your dad. You'll come out victorious.

Cuttercat profile image
Cuttercat

She obviously was proud of you and she should be. You took care of her and now she is free of this disease and loves you even more.

Bless you and your family at this sad time.

Cuttercat

arinkb profile image
arinkbβ€’ in reply toCuttercat

Thanks a lot Cuttercat for your nice words...very appreciated!

Jimjam22 profile image
Jimjam22

So very sorry for your loss, free from this cruel disease may mum rest in peace, love to all xx

arinkb profile image
arinkbβ€’ in reply toJimjam22

Thanks a lot... Jim!

So so sorry - know the heartache all too well.... so she was 58 when she was diagnosed? My friend is 57 and awaiting tests now at Mayo Clinic as Canadian doctors have not been able to pinpoint - only "suggest" it might be PSP. All her symptoms are on the "list" sadly ..... peaceful thoughts to you and yours.....

arinkb profile image
arinkbβ€’ in reply toMybeautifulfriend

Thanks a lot for sending those thoughts...! Yes she was 58ish... all these things are so assumptive! It is very much like all the people we are taking care of, here; none's diagnosis is full-proof and is based on presumptions and assumptions! Actually its not their fault totally, the disease itself is still at a very nascent stage with respect to its research.

But for your friend and all others who are still 'there', a lot of quick advances are happening in the neurological diseases and soon some solid treatment should come about... let's pray and have faith on Him!

Dickwin profile image
Dickwin

I am so sorry for your loss. What a special lady. Be kind to yourself. I know the loss must be devastating.

arinkb profile image
arinkbβ€’ in reply toDickwin

Yes it is... But thanks for your appreciation of my mother. She indeed was a super-happy warrior and gave it her best!

Cinnylou profile image
Cinnylou

I am so very sorry for your loss.

arinkb profile image
arinkbβ€’ in reply toCinnylou

Hmm... thanks!

daddyt profile image
daddyt

So very sorry for your loss. Hugs and prayers.

Tim

arinkb profile image
arinkbβ€’ in reply todaddyt

Thanks a lot Tim! Appreciated!

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