My Dad diganose with psp back in 2015 he is unable to speak now and sleeps alot

[Mohsin_ibrar]

We came to know in year 2015 my father had psp. He had sugurgies of both of his legs after 2nd surgery I think his disease Incrase a lot now he is not able to speak sleeping for almost 20 hours taking oral with fed tube I don't know how much time he had left Any advise and suggestions ( sorry for bad English)

[LuisRodicioRodicio]

Hi Mohsin_ibrar!

Sorry for the situation.

I am sending you some information about by HealthUnlocked private mail.

Hug and courage.

Luis

[AJK2001]

Sorry to hear this. Your situation isn't a million miles away from mine. Mum was diagnosed in 2014 and now struggles to talk, has a poor swallow and sleeps a lot. The one thing that seems standard for PSP is that everyone's journey is different and no-one knows how long it will be. All we can do is be there for our loved one offering them what support we can.

If you have specific questions about how to deal with a situation do ask away, there will be someone on here that has had to cope with something similar.

Strength to you, many people here know how wearing it can be. A

[teresa1988]

I am very sorry to hear of your father's situation which is quite similar to my husband's. I, too, wonder where we are headed from here. My empathy and understanding is extended to you during this difficult time.

Teresa

[AnneandChris]

Hello there

My husband was also diagnosed in 2015 after showing symptoms for about a year.

His swallow is poor but he still manages soft food. Eyesight is affected as is speech which is variable, from virtually non existent to quite lucid at times. He is now in a chair permanently and uses a Conveen which has reduced the number of falls. He had botox this week to help control excessive saliver which has worked.

It really depends on how quickly this horrid disease progresses.

So keep on keeping on

Anne

[Mikocat]

Hello. Sorry I can’t be much help but wanted to say that I feel your pain and am very sorry that you are also going through this.

My Dad was diagnosed ten years ago so it’s been a LONG road for us. He has recently (3 months ago) moved to nursing care as he now needs help with everything. He is pretty much bed bound, and doesn’t speak above a whisper.

I too wonder how long he has left, but it seems that this answer is different for every sufferer.