Inclined Bed Therapy (IBT)& Turmeric relating to Tau protein and the glymphatic system with PSP (Progressive supranuclear palsy)

[MrWhippy123]

Hello all.

I hope today finds you as well as possible.

Someone close to me, my mother-in-law is likely going to be receiving a diagnosis of PSP, and our minds are racing trying to find ways of dealing with their condition and maybe even slow the progression.

We've started them on a daily dose of Turmeric as my wife has found information that suggests this can prevent Tau protein getting tangled and I've found some information that inclining the bed by 15° raising the head (known as Inclined Bed Therapy or IBT) can greatly assist the glymphatic system. I wondered if anyone had tried it and had any kind of results, beneficial or otherwise?

I kind of stumbled accross the pratice around the same time as the possibility of a PSP diagnosis came about, there are passing references to benefits to alzheimers patients because of the effect of clearing extra-cellular Tau.

Once I was aware of a possible conection I thought that someone would have tried this but certainly can't find anything on the internet.

As she has not yet been diagnosed she has not yet been offered any medication so we don't know if she is going to be responsive.

If anyone out there thinks they might like to try it... it's free! I think it can't do any harm as long as you don't go too high too soon! A six inch raise on the head is apparently ideal but this should be reached in 2 or 3 increments.

Here are is a link that may be of interest to anyone wanting to try it: facebook.com/InclinedBedThe...

Any thoughts gratefully received.

Alex

[Bhakthan]

My wife was diagnosed with PSP in 2016. She had been regularly on turmeric pepper powder therapy for over 5 years now. She's also lying on an airbed on a hospital type cot, where she lies with her head in raised position. But we couldn't see any tangible benefits.

As of yesterday, she had a PEG feeding tube inserted for her swallowing difficulty. She's unresponsive now to the outside world's inputs.

[MrWhippy123 in reply to Bhakthan]

Thank you Bhakthan. It's such a cruel condition. Can I ask did you incline the whole body to 5° or just lift the head?

[Bhakthan in reply to MrWhippy123]

The headpost was lifted up by 4", and by the rotating handle we further lift or lower depending on her requirement! But the downslide of 4" is always there.

[ketchupman]

I had my wife on Turmeric for several years and never saw any improvement. I also had her in a hospital bed for the last 2 years if her life with her head raised substantially, down to her torso. She was on a PEG, so they recommend this elevation to help prevent aspiration. I would recommend it for anyone with PSP, even if they don’t have a PEG. During the day, she stayed in her lift chair, so if she did recline, she was never laying flat. About 2 weeks before she passed, I allowed her to lay on the sofa while I was watching TV. After about an hour, I heard her making a noise similar to a snoring sound. She was sweating profusely and drooling. I really think that started her whole aspiration pneumonia event. She passed 2 weeks later. Bottom line: I feel we should always keep their head elevated at all times.

Ketchupman

[MrWhippy123 in reply to ketchupman]

Thank you for sharing that.