Do I have psp?: I am Canadian. I need the... - PSP Association

PSP Association

9,660 members11,568 posts

Do I have psp?

Bellaismydog profile image
30 Replies

I am Canadian. I need the name of a doc with experience with psp to confirm the diagnosis. Anyone know a doc in Canada?

Written by
Bellaismydog profile image
Bellaismydog
To view profiles and participate in discussions please or .
30 Replies
Tttp profile image
Tttp

Hi there the best advice is go on the web Mayo Clinic, Progressive Supranuclear Palsy short for psp, it will go into detail symptoms, some have a few others have many, you need to go to a Doctor Specialist trained in neurology, normally they can tell in your eyes, and most do a brain scan to see if there is shrinkage, wish you the best. Nettie

Bellaismydog profile image
Bellaismydog in reply toTttp

Thank you Nettie! I will proceed locally ( Ontario ) and let you know.

Makua profile image
Makua in reply toTttp

Totally agree. You nat need to ask for a neurologist that specializes in Psp.

Pavaga profile image
Pavaga

We went to Mayo and to Dr O’suilleabhain’s in Dallas which is in my opinion an excellent doctor and he diagnosed my husband with PSP. It is worth it to see him.

Boyce3600 profile image
Boyce3600 in reply toPavaga

hi. may I message u privately regarding the Dallas doctor?

Pavaga profile image
Pavaga in reply toBoyce3600

Indeed.

Boyce3600 profile image
Boyce3600 in reply toPavaga

ok i forget how to do that. i have only done it once or twice and it's been a while... do u know how?

Pavaga profile image
Pavaga in reply toBoyce3600

I just sent you a message

Bellaismydog profile image
Bellaismydog in reply toBoyce3600

Dallas is too far for me. I am from Ontario and need help locally.

Bellaismydog profile image
Bellaismydog in reply toPavaga

The mayo and Dallas are far away. I am from Ontario and would like help locally.

Try this site to see if they can give you someone who is a movement disorder specialist near you.

pspsocietycanada.ca/contact/

Bellaismydog profile image
Bellaismydog

Thanks. I have contacted psp society to inquire about specialists near mevv

raincitygirl profile image
raincitygirl

Let us know how it goes, Bella. Another option is to contact the neurology department of the nearest university teaching hospital to you. Our neurologist was at the University of BC Centre for Brain Health.

Good luck!

Anne G.

Bellaismydog profile image
Bellaismydog in reply toraincitygirl

Thank you I will let you know!

Trish-dave profile image
Trish-dave

Dr. Cresswall. Movement specialist. Works out of university of British Columbia UBC. Awesome

Bellaismydog profile image
Bellaismydog in reply toTrish-dave

Thank you I am in Ontario and need help locally.

Bipa profile image
Bipa

Dr. Ali Rajput, renowned Parkinson Neurologist in Saskatoon, diagnosed my husband’s PSP. Originally he thought it was Parkinson but after checking his eye movement and knowing my husband was falling daily, confirmed it is PSP.

itsjustme2018 profile image
itsjustme2018

If you are in Alberta, the movement disorders clinic at u of c is more psp focused than anyone in edmonton.

Bellaismydog profile image
Bellaismydog in reply toitsjustme2018

Now in Alberta. Ontario. Looking for local assistance

Bellaismydog profile image
Bellaismydog

I am in Ontario and need help locally.

in reply toBellaismydog

movementdisorders.ca/

m.facebook.com/PSP-Society-...

We live on the west coast and after seeing two other neurologist that had no idea and then after many months of waiting got in to University of British Columbia to the head neurologist and was diagnosed right away.

Good luck

Dee in BC

canadian37 profile image
canadian37

If you are in or near Toronto, your doctor can refer you to either the The Jeff and Diane Ross Movement Disorders Clinic at Baycrest or the Movement Disorders Centre at Toronto Western Hospital. There is a two-year waiting list for the Toronto Western but you can ask to be put on the cancellation list and keep phoning to ask if there is a cancellation. My husband, who has PSP, got in in 14 months.

Etoile profile image
Etoile

Hi Bella. Where are you in Ontario?

Bellaismydog profile image
Bellaismydog

TORONTO area

Louizos profile image
Louizos

Dr Carmela Tartaglia at the UHN (Toronto Western) she is a specialist with Atypical Parkinsons (PSP,CBD,MSA)

She and her team there are amazing.

Tttp profile image
Tttp

Hi Bella just thinking of you have you had a chance to go see a neurologist at times it takes a while to even get a appointment, hope your doing ok. Nettie

Bellaismydog profile image
Bellaismydog in reply toTttp

Dr tartaglia is a good pick. I think I am in two of her studies.

Bellaismydog profile image
Bellaismydog

Hi Nettie

I have seen a neurologist twice and see him again on the ninth. I will ask him to be definitive.

Tttp profile image
Tttp

Wishing you the best. Nettie

Not what you're looking for?

You may also like...

Do I have PSP? What else?

I live in India where the awareness of PSP is very low. With the exception of (1) early falls and...
dethiraj profile image

do You have PSP

I would like to speak with people who have PSP not their careers if there are any out there? It...
Janet5 profile image

I think I might have PSP

Hi everyone This is my first post in the forum. I wanted to hear from people with PSP, as I...

PSP experience with Kaiser

Has anyone had any experience dealing with doctors at Kaiser Permanente treating PSP.? We are in...
Sfen profile image

MY DAD WHO DID NOT HAVE PSP HAS DIED AGED 92 (I HAVE PSP)

HI ALL I THAS BEEEN SIGGESTED THAT I WRTE A PROPER POSTN ABTOUMHY DAD AS YOU WILL WANT OT KNWO SO...
jillannf6 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.