My hubby died “unexpectedly “ on Friday. Can hardly believe that I am
writing those words doesn’t seem real. I clearly understood he had a life limiting illness but to die so suddenly-what a shock. He has never had a UTI, chest infection or fracture, no periods of hospitalisation. But as a doctor this is exactly the death he would have wanted except I wasn’t there.
He had a really challenging few days with increased night time/daytime agitation, sweating, more falls and rigidity but we have been through these periods before
His swallowing has deteriorated and we were working to maintain his weight. He was adamant he did not want a peg and would eat . He had couple of tricky choking episodes recently and sadly that is what happened.
R had spent a week in a care home before Easter and I had taken his DNR in with him -stupidly did not collect it -it has lived by our front door for the last 5 years - he was so adamant he did not want to be resuscitated. Carer feeding R lunch called 999 I was home within 10 mins and found him with paramedics in full flow..... They could only stop when senior paramedic reviewed his ADRT which was in his carers folder which stated no resuscitation under any circumstances.
I would hate anybody else to go through this scenario hence all of these details.
This site and the friendship and support made our PSP journey smoother your expertise helped me be a better carer. Thank you so much