I last posted a few months ago when I was in the midst of a CHC application for my mum, which luckily was granted. My dad is essentially my mum's carer, but she is can barely communicate, can't walk (or even weight bare), needs to be fed soft foods and is barely continent. As both have resisted any help, we thought it best to have carers in for an hour and a half in the morning to get her out of bed, dress her and wash her and in the evening to put her to bed.
To be honest, it's been a shambles.
The carers are supposed to arrive at 9am, (we wanted 8 - but no availability) but they usually get there closer to 10, by which time she has usually soiled herself and become distressed. There is rarely twice the same carer, so she has built up no rapport. Until I complained only one carer was often turning up ( she needs two) so my dad was having to assist anyway. They are usually there for 20 mins a session, even though they are paid for 90 minutes and so on. The standard of care itself is often poor with mum not being washed properly. One even put my mum's dirty nappy in the food bin. Frankly, the situation is probably worse than if we had no carers.
I don't so much as blame the carers as the management of the company as the carers are clearly under loads of pressure. I have looked at the independent commissioners report for the company and it is dire. It's the only company in my area approved by the Council / NHS (sorry, never remember who is responsible for what, these days).
So I did some independent research and came up with an alternative care company who have excellent reviews and I have spoken to them and it sounds that they are committed to offer more care. I have spoken the CHC lady (again, I'm sure she has a more official title) and as they are more expensive and not on their books she is coming out to see us to discuss private health budgets. However, she was at pains to tell me that this would involve a lot more administration and liability on our part, so I am a bit worried.
I know nothing about these budgets and how they work. Ultimately, I'll do what I need to do to ensure Mum has the best care.
Does anyone have any guidance to offer?
Thanks to everyone in this forum for their input, by the way. I read every post and it's been so helpful to me. I'm a bit embarrassed that I only post when I have a question. I'm sure that with all that I'm learning I will be able to help others sooner rather than later.
Karen