I've been keeping notes on dad, CBD, for just over 4 yrs, ever since he moved in with me. I started taking them so I'd remember things to bring up at doctor visits because at times the appts were months apart. Even now after being in a nursing home I still jot down things I think are of importance.
The problem now is.. what do I do with them? They are a good record of his personal progression and possibly a decent baseline for others. I've asked his neurologist if he'd like a copy but he didn't express much interest.