Progressive Supranuclea Palsy was today recorded on my hubby’s Death Certificate. The Registra had never heard of such an illness let alone record it. She was honest and said she had to google it and couldn’t believe what a dreadful disease it is. Well we can all vouch for that.
I must apologise to all you wonderful people for not thanking you before for all your kind words and advice but my head has been .... and still is .... in a ‘bubble’.
My daughter, son and I will be visiting the Chapel of Rest each leaving him with a note telling him again how much we love him ... we will kiss him goodbye and on the 2nd January it will be his funeral service.
I wish you all a peaceful Christmas and New Year.
Love and big bear hugs to you all Jxx 💕
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Zeberdee
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That is good they recorded PSP on the death certificate, I am sure that someone said they wouldn't do it for them. Sending you a big hug. Yvonne xxxxxx
Jean I also think about you, hope you and the family are ok, merry Christmas to you. Sending you a big hug Yvonne. George is coughing and choking so much I feel frightened xxxxx
I live in Los Angeles, CA, USA. Here ONLY the MD is allowed to submit/enter the cause of death. I was allowed to supply all the other information on his death certificate. His HOSPICE MD submitted Progressive Supra Nuclear Palsy.
That's brilliant. The more we get this on death certificates, the greater attention it gets from government. My Registrar took ages to accept PSP on Steve's certificate, finally after several phone calls, he was allowed to enter this, as cause of death.
Hope your "bubble" stays with you for a while yet. I too, wrote a letter and left it with him.
I'm pleased they recorded the death as PSP it's important for it to be recognised and that future generations who research their family tree are given the correct information.
Will be thinking of you on the 2nd January, I expect Christmas will be pretty much overlooked this year.
There is really only 1 way to get a 100%definitive cause of death ...That said.... by donating your brain to the Mayo Clinic bank ...with CBD PSP and the other 3-4 similar brain deficient diseases there is a 40% margin of error in cause of death If you dont donate your brain for analysis. I encourage this process because they can learn an immense amount of factual knowledge from both infected brains and normal brains that will benefit future contractors of these horrible diseases. I'm glad you have closure on why your loved one passed ..my heart goes out to you ..my wife is struggling w/PSP for about 5 yrs and we constantly try to do what is good for these brain diseased communities . I only wish we had our eyes on the finish line of a cure .....xx jeff
Jeff I am so sorry to hear your wife is struggling seems especially harder at this time of year when everyone wants to be happy. My hubby bravely fought PSP for four years which seems a relativey short time but seems many years longer when you are watching your loved one deteriorate. My thoughts are with you. Jxx
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My darling husband is now at rest
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