John went into the hospice 10 days ago to see if they could help with his excessive saliva. I had a break away. When I went to pick him up on Monday he’d had a severe downturn. Just about able to raise his hand very slowly, no speech, his eyes staring as his blink reflex has gone. Just lying in bed and quite unresponsive. I’ve been to see him everyday and each day he seemed a little worse. He’s barely eating but my darling is still managing a little red wine. They rang me yesterday to say he had deteriorated further and he has a blood clot in his leg. They are giving him blood thinners for that but he is dying. I rang our children and they all left their jobs and came to see him (their spouses and our baby granddaughter came as well). We sat around his bed and we held his hands and kissed him. I’d been crying and praying for him but when the children came he seemed to relax and went to sleep and we sensed he was content the whole family’s as with him. I’m so sad I can’t stop crying but we want him to be free from this terrible disease and the dementia with Lewy Bodies he has. It’s very hard though. Vron xxx
So sad: John went into the hospice 10 days... - PSP Association
So sad
Thinking of you all, Vron. I know how hard it is. Another big hug from Jean x
How very very sad,hugs to you and your family,do hope his journey is a peaceful one.
Dee
So sad again to read. Cuddle John and tell him you love him. One lasting memory for me last Thursday as hubby slipped away was telling him how much I loved him and kissing him on the lips ..... his kissed me back .... I will always treasure that last kiss. I am thinking of you. Bear Hugs for you. Jxx
Big hugs and love ❤❤😢😢
Oh my goodness Vron I’m so so sorry, the amount you’ve had to deal with in the last few months is quite unbelievable, try to keep strong it’s the only thing that will keep you going. Sending lots of love and huge hugs. X
Hi Vron
Its hard.
Tears are good.
There is nothing I can say as I too am facing similar downturns and sadness with Liz. I tell myself, it is what it is and all we can do is love them and make sure they are comfortable.
Warmly and sadly
Kevin
Lots of hugs and love. I know exactly what you are going through xxxxx
Vron I am so sad for you. I know what it is like and how it breaks your heart. Poor John. My love and prayers to you both and to your family. There have been so many deaths in 12 months it's hard to comprehend at times.
Love him and hold his hand and kiss him. All you can do now? Let him know you are there for him. God Bless you both.
Marie x
Thinking of you, Vron, with an aching heart. I am so sorry. More hugs from over here. Love and peace, ec
Sending lots of love and hugs to you and the family at this difficult time. Wishing that John is feeling loved and contented that you are all there with him.
Love Kate xxxx
I'm so sorry to hear the latest news Vron.
So many posts on this site make me cry. This is another one. I hate PSP so very much.
Be strong for him just a little longer Vron....
Hugs
Vron so sorry, and sorry my reply is latexxxx
Im glad the family was all there. It hurts to say good by but the sun will come out tomorrow and you will remmember the good times. His pain is over. I pray for Gods Blessings for you and YOUR family. Love Jenny
Hi Vron,after 3years of psp with my Kathy i fear the worse is yet to come,we have she'd many tears together, but i hang in there.you must be strong for your family through this tough time, with love and support you will manage to the end,love and lots of hugs , Peter
So very sad x
So very sorry about the situation you are in. Just keep loving him and showing him what he means to you. May you be granted peace in this difficult time. God bless.
I feel so badly for you. It is a horrific disease. God bless you all.
So sorry! Kiss him!hold his hand, touch his arm.Be as close to him as you can.My biggest regret is that I did not know the end was near and did not know to do more of that.
Thinking of you at this difficult time, so pleased all the family has rallied around you both
Sending love and hugs
Tippy
God Bless you, I wish I would've known my husband was going so fast, I would've done things differently! I'm dealing with guilt of not knowing and doing more. Oh this damn PSP, it's so horrible to put it mildly!
Hugs and Love sent to you