Posts - PSP Association | HealthUnlocked

PSP Association

9,568 members • 11,525 posts

All posts for July 2017

Finally asked for help

Hi all. I've finally had to admit defeat and ask for help. Last Monday morning first phone call was made to the OT only to be told our OT had moved to France...

Hi all. I've finally had to admit defeat and ask for help. Last Monday morning f...

•7 years ago

No more admissions

My Dad is being discharged after nearly 3 wks in hospital. He suffers from aspiration pneumonia & he has had the last 3 infections back to back. He has decided...

My Dad is being discharged after nearly 3 wks in hospital. He suffers from aspir...

•7 years ago

Carers allowance

Hi Just a reminder to all you lovely people in the UK to use the carers allowance provision if in receipt of full attendance allowance. If you are under...

Hi Just a reminder to all you lovely people in the UK to use the carers allowanc...

•7 years ago

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PSP and aggression

My husband has PSP and shown signs of aggression, is this common and what triggers, apart from frustration, has been experienced. Your help very much...

My husband has PSP and shown signs of aggression, is this common and what trigge...

•7 years ago

CHC Funding

Have been afraid to post in case I have been dreaming. Received a phone call late afternoon Friday to say we have been given funding. So gobsmacked I could...

Have been afraid to post in case I have been dreaming. Received a phone call lat...

•7 years ago

Relaxing in the Spanish sunshine ☀️

Never thought this would happen again but managed to get mum ( Mary) to a very quiet little spot in Spain where she was able to relax in the shade . So worth...

Never thought this would happen again but managed to get mum ( Mary) to a very q...

•7 years ago

Care home chaos!

Hi all. My dad is booked in for two week's respite from this Wednesday, to allow my mum to have her cataract op, and some rest. Care home carefully selected,...

Hi all. My dad is booked in for two week's respite from this Wednesday, to allow...

•7 years ago

CHC and altered state of consciousness..

Hi all I am considering summoning up the energy to appeal the CHC funding decision and I came across this....

Hi all I am considering summoning up the energy to appeal the CHC funding decisi...

•7 years ago

Waterworks

Just checking before I agree to the knife. I have been living with PSP for over 5yrs and I believe so far that I have been let off lightly BUT: I have been...

Just checking before I agree to the knife. I have been living with PSP for over ...

•7 years ago

new to PSP.....so many decisions....should i still plan honeymoon

hi all, very very sad to be here. Myself and husband got married 1 month ago, then this week my world came crashing down, my Dad has a diagnosis of PSP...

hi all, very very sad to be here. Myself and husband got married 1 month ago, ...

•7 years ago

Tremors occur after 9 yrs

Another new symptom.9 yrs after Parkinsons dx,and 16 months after PSP dx,tremors have just begun.I thought after so long with no tremors he would escape at...

Another new symptom.9 yrs after Parkinsons dx,and 16 months after PSP dx,tremors...

•7 years ago

Out of hospice and in hospital

Prayer warriors unite... For those of you who know my story, yes, I'm still living in Hawaii while my family is in Wisconsin. Thousands of miles away. I fly...

Prayer warriors unite... For those of you who know my story, yes, I'm still livi...

•7 years ago

Veronica Mills Rocks!

As you will have seen from Georgepa's post we lost my amazing Mum Veronica yesterday. She was my champion, my inspiration & my rock and always will be. My...

As you will have seen from Georgepa's post we lost my amazing Mum Veronica yeste...

•7 years ago

Will one's swallow a summer make?

OMG!! For the second time this year, my mother is refusing to eat by keeping her mouth closed. She did the same thing around three months ago, but at that...

OMG!! For the second time this year, my mother is refusing to eat by keeping her...

•7 years ago

VERONICA THE MOST BELOVED WIFE OF GEORGEPA

Veronica , the most beloved wife of Georgepa has finally defeated PSP . She died peacefully in her sleep in the early hours of July 6th . She bore her...

Veronica , the most beloved wife of Georgepa has finally defeated PSP . She die...

•7 years ago

Continuing Health care

Hi folks, I would be obliged for a bit of information if possible. If ones social care package is completely funded by social services is there any advantage...

Hi folks, I would be obliged for a bit of information if possible. If ones socia...

•7 years ago

Feeling isolated

Hello my name is Rebecca and I'm 47 and was diagram last year at Parkinson's nsw Sydney Australia with cortisal had basal ganglionic degeneration I'm feeling...

Hello my name is Rebecca and I'm 47 and was diagram last year at Parkinson's nsw...

•7 years ago

Greetings from Indhu in USA

Greetings from Indhu whose husband has PSP (Progressive supra nuclear palsy) from Charlotte, North Carolina, USA. My husband was diagnosed 2 years ago with...

Greetings from Indhu whose husband has PSP (Progressive supra nuclear palsy) fro...

•7 years ago

to await definite diagnosis - to tell or not to tell

hi - my dad (79yrs) attended geriatric clinic with symptoms of falls backwards, fuzzy head feeling and difficulty finding the right words. I have found out...

hi - my dad (79yrs) attended geriatric clinic with symptoms of falls backwards, ...

•7 years ago

Eyesight

Hi everyone. John has on occasions lost sight in his left eye. This is the really droopy one and seems to be the most

Hi everyone. John has on occasions lost sight in his left eye. This is the reall...

•7 years ago

Travel Question

We haven't traveled by air since Mike's diagnosis over a year ago. But in spite of some apprehension we're flying to Florida this month. I've talked to the...

We haven't traveled by air since Mike's diagnosis over a year ago. But in spite...

•7 years ago

Talk to me as well

I have heard from a lot of people that when they phone or Pop in My guy talks pretty good. Last time he talk to me when he told me not to change the TV...

I have heard from a lot of people that when they phone or Pop in My guy talks p...

•7 years ago

Pneumonia and UTI

My husband has been in hospital for a week with the above. Hopefully,he will be home soon. The docs seem to expect him to get them again and have been talking...

My husband has been in hospital for a week with the above. Hopefully,he will be ...

•7 years ago

New joiner

Hi my name is Julie and I was diagnosed in 2014 at the age of 50 with Parkinson's Plus. I was told that my actual diagnosis was more than likely Cortical Basal...

Hi my name is Julie and I was diagnosed in 2014 at the age of 50 with Parkinson'...

•7 years ago

Falling asleep while eating

A new wrinkle. Charles sleeps most of the day now and even during eating. Just stops and sits there. Has this been an issue with others at this stage? His...

A new wrinkle. Charles sleeps most of the day now and even during eating. Just...

•7 years ago

Struggle and stress

You will ALL know about this !! Some stress cannot be removed obviously , but some is totally unnecessary. Been struggling to get a doctor from surgery to...

You will ALL know about this !! Some stress cannot be removed obviously , but so...

•7 years ago

There will be NO crutch vaulting!

Enough said.....

Enough said.....

•7 years ago

PSP Assoc. Request for our help

Hi folks this is being emailed out by the PSP Association. Just in case some, like me, never got it. "We've got a chance to receive a £25,000 grant, but we...

Hi folks this is being emailed out by the PSP Association. Just in case some, l...

•7 years ago

4th July

Hi to all of our American friends and a very Happy 4th July to all of you from your friends here in Scotland. Margsret

Hi to all of our American friends and a very Happy 4th July to all of you from y...

•7 years ago

Georgepa on the rampage......HELP

So, as you will have gathered, my Dad, Georgepa is in the possession of a mobility scooter which he finds great fun.......I DO NOT!!!! Having tried to wheelie...

So, as you will have gathered, my Dad, Georgepa is in the possession of a mobili...

•7 years ago

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