No more admissions : My Dad is being... - PSP Association

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No more admissions

15 Replies

My Dad is being discharged after nearly 3 wks in hospital. He suffers from aspiration pneumonia & he has had the last 3 infections back to back. He has decided not to go into hospital again and be treated at home. The Dr has told us oral antibiotics can still work but basically saying it will be end of life. He gets so much other care when admitted, ie; iv, fluids & he usually goes into AF. So I don't think there's much hope that he will recover next time. Dr's assure me St Peter's hospice/fast track CHC will be put in place so we would t be alone but it's frightening stuff. Not sure how I'm going to cope emotionally. My 10 yr old is very sad about her Grandad too.

My feelings aside, obviously I'm glad my Dad won't suffer anymore after he's gone but it's a hard road. :(

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15 Replies
Sonia1970 profile image
Sonia1970

Yes it's a very hard road so sorry for all of you can relate as I'm terminally I'll and I'm 47 with a 9year old son I hear and totally get what your saying god blest you may find your inner strength

Marie_14 profile image
Marie_14 in reply to Sonia1970

Sonia I am so very sorry. Hard enough that you are ill but to have a young son must be wonderful but truly heartbreaking too?

My husband died in February and my Grandchildren seem to have coped well. Both of them knew he would die so maybe that helped? One is now 14 and the other is now 8. I had all my Grandparents die before I was 8 and my father died a month after my 15th Birthday. I am still here, and I have good memories of all of them. So make happy times for you all. When you can of course.

Take care and we are all here for you. This includes you Looking after Dad.

Marie x

in reply to Marie_14

Thankyou x

Sonia1970 profile image
Sonia1970 in reply to Marie_14

God bless you and ye family

in reply to Sonia1970

Thankyou Sonia x

easterncedar profile image
easterncedar

Once my sweetheart came home from the respite for the last time, I was advised to have hospice called in. There were three providers to choose from, and I was helped to decide, and it was just right. Hospice was wonderful for us. They sent my sweetheart a massage therapist and a music therapist, both of whom helped a great deal. The nurse called every morning to arrange a visit if needed, and there was a "tuck-in" call at night, too, to check on us before the night shift came on. I had a couple of minor emergencies at night and a nurse came right out. Medicines were delivered to the door. The social worker helped me think about the arrangements with the funeral home. The nurse even helped me wash and dress him afterwards. They anticipated every step for me, and I felt supported all the way. It was a strange, sad and stressful time, but our hospice took excellent care of both of us. I hope you get all the help you need, too. My thoughts are with you, wishing you and your family love and peace, Ec

in reply to easterncedar

Thanks Ec, that's reassuring to hear. I hope I do get the proper help too, the drs seem to think I will. I'm so pleased to get him home in the morning x

easterncedar profile image
easterncedar in reply to

Being at home, if it can be managed, is good.

Spiralsparkle profile image
Spiralsparkle

I can understand his decision not to go back into hospital but for you it is not what you want to hear that maybe the end of his journey maybe nearing faster than you want to be able to say goodbye. We all don't want our loved ones to suffer but also don't want them to leave us either. It is such a tough road for all concerned.

Big hugs 🤗

in reply to Spiralsparkle

Thankyou. Yes, it's the best for him but oh so hard x

Julieandrog profile image
Julieandrog

Hi

Have him home hold him tight, i promise you now that he has decided to stay home everything will fall into place.

Julie x

Tippyleaf profile image
Tippyleaf

What a brave man to make his decision, terribly hard for you to support, hope you have all the support you need at Home when the time comes

Look after yourself

Love and hugs

Xxxx

in reply to Tippyleaf

Thankyou so much x

doglington profile image
doglington

It sounds like the right way to cope and let nature take its course. Stay strong and give him lots of love, as I'm sure you do !!

Big hug from Jean x

in reply to doglington

Thankyou Jean.x

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