Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for August 2016

Daddy, my daughter and me just 3 little years ago 9-13

Daddy had not been correctly diagnosed at the time this pic was taken in Sept of 2013, although he'd been showing symptoms for a decade, since 2006. His first...

Daddy had not been correctly diagnosed at the time this pic was taken in Sept of...

•8 years ago

Symptoms that come and go?

For the last year or longer Daddy has had a HUGE issue with, this is gross.. lots of mucus flowing from his nose when he'd eat and (he or his wife..) would...

For the last year or longer Daddy has had a HUGE issue with, this is gross.. lot...

•8 years ago

Our caregiver is not a morning person

Noella 21 Today we had a morning appointment. Our cargiver comes in at 9am and appointment was for 10am. In she comes with an extra large Tim Horton Coffee. I...

Noella 21 Today we had a morning appointment. Our cargiver comes in at 9am and a...

•8 years ago

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Getting through the day

Poorly husband today, hot and cold sweats and shivers. wanting toilet than cannot go. Feeling sick, clearing his throat constantly. Initially I thought he'd...

Poorly husband today, hot and cold sweats and shivers. wanting toilet than canno...

•8 years ago

Amanda's Zip Wire

I would just like to thank everyone for their support. Amanda did her zip wire on Saturday and I am sure her nan is proud of her, I know I am! xx

I would just like to thank everyone for their support. Amanda did her zip wire o...

•8 years ago

Just a question.

Good Evening! I hope this finds everybody well. Just a quick question. Has any of your loved ones have any success reading with an e-reader or tablet? If...

Good Evening! I hope this finds everybody well. Just a quick question. Has any ...

•8 years ago

Diagnostic Approach to Atypical Parkinsonian Syndromes

I am attaching a link to an article in Continuum, a journal for neurologists. It may give you more than you want to know about PSP and CBD, but it is my...

I am attaching a link to an article in Continuum, a journal for neurologists. I...

•8 years ago

Vacant look

Worried about mum, I know that psp affects the eyes and I've got used to her glare but somethings different today the only way I can describe it is mums...

Worried about mum, I know that psp affects the eyes and I've got used to her gla...

•8 years ago

An Index for Navigating Continuing Health Care Process

This is a work in progress. The formatting is lost in this copy / paste post An easier to read version is downloadable here:...

This is a work in progress. The formatting is lost in this copy / paste post An ...

•8 years ago

liquid drugs?

I have been talking to dr about this subject to no really good avail until the other day. She ordered up valium as opposed to pill only of Ambien. then...

I have been talking to dr about this subject to no really good avail until the o...

•8 years ago

excited!

whoooo! through floor lift fitted what a fantastic bit of kit! have no money left but such is psp. kids think it is grandad's space ship and have been up and...

whoooo! through floor lift fitted what a fantastic bit of kit! have no money lef...

•8 years ago

Swallowing difficulty in PSP

My father was diagnosed with PSP 6 years ago. He is findings huge difficulty in swallowing food & liquid. Can anyone suggest what can be done to handle this...

My father was diagnosed with PSP 6 years ago. He is findings huge difficulty in ...

•8 years ago

THIS IS THE BUNGALOW WE ARE DESPERATE TO BUY YOU CAN CHECK IT OUT ON RIGHTMOVE .CO.UK

3 bedroom bungalow for sale 53 Gorse Farm Estate, Llandrindod Wells, Powys

3 bedroom bungalow for sale 53 Gorse Farm Estate, Llandrindod Wells, Powys

•8 years ago

OUR FRENCH ODYSSEY

UPDATE FOR ALL- WE HAVE SOLD OUR HOUSE AT LAST TO A FRENCH FAMILY -- AN OLDER COUPLE AND THEIR SON AND DAUGHTER IB - LAW PLUS 2 KIDDIES '''' IT ONLY TOOK 4...

UPDATE FOR ALL- WE HAVE SOLD OUR HOUSE AT LAST TO A FRENCH FAMILY -- AN OLDER ...

•8 years ago

My heart is heavy. My guy is resting in peace.

My heart hurts. It is with so much sadness that I share with all of my PSP friends this news. My guy Les Hodgson passed away in his sleep on Monday morning. We...

My heart hurts. It is with so much sadness that I share with all of my PSP frien...

•8 years ago

Peterjones is back!!

Hey all, great news!!! I just got a message from our grand friend, the "psp bloke" in Queensland. He's been in the hospital - surgery for carpal tunnel...

Hey all, great news!!! I just got a message from our grand friend, the "psp bl...

•8 years ago

Confirmation Brian has PSP!

Four years ago Brian suffered a Pulmonary Embolism affecting speech and slowing movement, where hiking up hills became ambling to the bus stop! Two years...

Four years ago Brian suffered a Pulmonary Embolism affecting speech and slowing ...

•8 years ago

Constant tapping

Hi my lovely friends, I am curious. Mum has psp and taps constantly with her hand. It started when she wanted something, she would then knock with her knuckles...

Hi my lovely friends, I am curious. Mum has psp and taps constantly with her han...

•8 years ago

Advice needed on Chc funding

Mum had an assessment done and it came back that mum only has 30 percent nursing needs (which I feel is ridiculous) they say the rest of her needs are social...

Mum had an assessment done and it came back that mum only has 30 percent nursing...

•8 years ago

Incontinence, overnight diaper changing, bedsores, opinions please

I noticed when researching this question that the answer depends on who you ask. Should incontinent sufferers be woke up during the night to have the wet...

I noticed when researching this question that the answer depends on who you ask....

•8 years ago

Breathlessness

Dear L' is getting very breathless. She stops to breath deeply a lot when eating and moving. Is this common with PSP please? Thanks Kevin xx

Dear L' is getting very breathless. She stops to breath deeply a lot when eatin...

•8 years ago

CHC Funding all day...Ugh

Walk on by folks - Just a PSP Carer ventilating. We have been getting care support from the Community Care Group on the Fast Track route. It lacks flexibility...

Walk on by folks - Just a PSP Carer ventilating. We have been getting care suppo...

•8 years ago

Raising money for PSP

Hi all, My daughter Amanda is doing the Velocity Zip Wire (longest in Europe and fastest in the world) this Saturday (13th August) to raise money for The PSP...

Hi all, My daughter Amanda is doing the Velocity Zip Wire (longest in Europe and...

•8 years ago

Another year over

Do not know whether to celebrate or crawl under a rock. Today I am officially classed as an old age pensioner (65), besides the many birthday cards this...

Do not know whether to celebrate or crawl under a rock. Today I am officially c...

•8 years ago

Holiday

We did it managed a week away with mum and dad, thought I'd share how happy mum and dad look. It was abit difficult at times, but worth everything.

We did it managed a week away with mum and dad, thought I'd share how happy mum ...

•8 years ago

Love and relating from a fading brain.

Kevin has told me that one of the problems with PSP is that my brain can no longer learn very easily. Also that I sometimes have difficulty understanding some...

Kevin has told me that one of the problems with PSP is that my brain can no long...

•8 years ago

Sorry I'm moaning again!

Hi everyone, well we've had another bad start to the day! Keith's hospital bed has been moved downstairs now, I've bought a baby monitor so I can keep an eye...

Hi everyone, well we've had another bad start to the day! Keith's hospital bed h...

•8 years ago

Sunshine Ice cream and Chocolate

We were both a little raw from yesterday... but we went into the garden and Liz enjoyed the flowers whilst I did some gardening and then she supervised some...

We were both a little raw from yesterday... but we went into the garden and Liz ...

•8 years ago

I think I'm going slightly insane!

I've had a day made of nightmares today, I've been on the go since getting up this morning and I haven't actually achieved anything! Keith's mobility has been...

I've had a day made of nightmares today, I've been on the go since getting up th...

•8 years ago

Chill out time with a gorgeous young Lady.

Every day I let Colin hold one or two of our Guinea pigs. Today it was the turn of Tess, renamed Lady. She stayed still as he stroked her with a finger. It's...

Every day I let Colin hold one or two of our Guinea pigs. Today it was the turn...

•8 years ago

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