Four years ago Brian suffered a Pulmonary Embolism affecting speech and slowing movement, where hiking up hills became ambling to the bus stop! Two years later the first sign of PSP was a backwards fall down our twelve stairs. Last year whilst getting new glasses he confused everyone insisting he could see better with his old pair. Specsavers were wonderful testing everything twice but still he couldn't see. I said something would turn up and it sure did!
In March the backwards falls started, he became extremely unsteady, with twitching limbs, shaking hands and disturbed sleep. Until then he refused a Doctor but now no choice. Having a 'lightbulb' moment and checking 'Google' I asked if it could be Parkinson's - it was a possibility and Brian was referred to the 'Falls Clinic' but falls came thick and fast and he was fast tracked to a Consultant who immediately started him on Madopar. In May, first diagnosis of PSP with referrals to a Neuro Specialist, plus Occupational and Physio Therapists and Madopar doubled.
Between diagnosis I was at rock bottom until I found the PSP Forum where you all welcomed me so warmly, giving me hope and guidance. Last week we received confirmation and we are now in the loop and receiving help.
I know this is just the beginning but a problem shared is a problem halved and I take this opportunity to thank you all for help received and that to come and send my best wishes to you and your loved ones.