Breathlessness

[Kevin_1]

Dear L' is getting very breathless. She stops to breath deeply a lot when eating and moving.

Is this common with PSP please?

Thanks

Kevin

xx

[Nanny857]

Hi Kevin, W's speech therapist commented that his breathing was quite loud, and yes he complains of being breathless quite a lot. I put it down to PSP.

Nanny857

[Kevin_1 in reply to Nanny857]

Thanks - she has to catch her breath and breathes as if having exerted herself.

[jzygirl]

I'm afraid it is part and parcel of psp. But that said it would be an idea to get it checked.

Brian said he did it because he couldn't breath and eat at the same time. And if liz is like Brian he will chew everything including fresh air, and all the time he is chewing he is not breathing so my tip is try small mouthfuls and breath between each one. Not only that they do find it difficult to nose breath.

Hope this helps Janexx

[Kevin_1 in reply to jzygirl]

Spot on - she takes big mouthfuls and does not breath whilst chewing.

Doh! How did I miss that... but she get's breathless to anyway.

Small chopped up food from now on!

Thanks

Kevin

xx

[Satt2015]

Kevin

My dad gets very breathless when/after having a drink

I have no idea if there's a remedy 😢

[Kevin_1 in reply to Satt2015]

Reading the other posts Satt it seems its part of the PSP.

Yes, no remedy

[Satt2015 in reply to Kevin_1]

😓

[vlh4444]

Yes Kevin, definitely a PSP problem I think (although maybe you should get GP to check just in case). This is going to sound mad but D can only breath out and not in! Well of course he does breath in but only shallowly and not voluntarily. If I ask him to take deep breaths he will breath out forcefully and loudly but cannot do the same for breathing in. He gets breathless when eating or drinking so I am careful to give a good rest between spoonfuls and take the straw out of his mouth after a couple of sucks to allow a breathing space when drinking.

V x

[Kevin_1 in reply to vlh4444]

Yup, GP time... thanks.

[easterncedar]

Has she had her heart checked recently? What you describe may be psp, but is also a common symptom of heart trouble.

[Kevin_1 in reply to easterncedar]

And the coughing ec, just as you said in the other thread... Thanks GP time it is.

Thanks

[easterncedar in reply to Kevin_1]

My guy was diagnosed with congestive heart failure (afib) just weeks ago, and I panicked, but the doctor said it wasn't as bad as it sounds ("They really need to come up with a better name for this." he said.) and prescribed a low-dose beta-blocker, and three weeks later the heart rhythm was back to normal. I hope whatever is going on with Liz is as easily diagnosed and treated. Love, Ec

[Kevin_1 in reply to easterncedar]

Thanks ec - that was the fear I had in the back of my mind.

G.P. and no prompting needed this time.

Kevin

xx

[easterncedar in reply to Kevin_1]

Of course it could be many other things, like a new allergy or other minor problem, but since both my mother and sweetheart have recently been diagnosed with CHF, I see it everywhere!

[Heady]

Is Liz, breathing badly or is it definite breathlessness? Again, you need to get the speech therapist involved and probably the neuro physio. It's bound to be the messages not getting through again, or getting misunderstood, but you do need to get it checked out. Our physio has given S exercises, that his personal trainer does with him twice a week and me if I remember!

Lots of love

Heady

[Kevin_1 in reply to Heady]

Thanks Heady

Both,

So its back to the speech therapist and a G.P. appointment.

I am so bad at keeping L' to her exercises - I have an alarm on my phone now to remind me.

Thanks - will follow your advice.

Kevin

xx

[abirke]

Does she give a reason why she does this?

[Kevin_1 in reply to abirke]

She says she needs to breath like to get her air.

I think I've got three leads for the thread now.

Smaller mouthfuls

G.P. and heart

Speech therapy -- exercises.

And it may well be 'just PSP'

Any more suggestions gratefully received .

She get's distressed with it.

Thanks AVB

Kevin

xx

[easterncedar]

Kevin, I'm wondering how Liz is doing. Has she had any relief from the breathlessness?

[Hidden in reply to easterncedar]

Sorry ec

We both missed this post until today.

A lot happening here - not all of it good!

Yes, my breathing has improved and the coughing has stopped!

The speech therapist prescribed thickeners for my drinks. Its a new brand called 'Resource' and it has no taste. I don't like the texture, but it is so very good that even though we don't actually use it I am no longer choking on my fruit juice.

Its all very odd!

Thanks for being there and asking.

Love

Liz

xx

[Richard33]

Kevin

Forgive me for replying to such an old post. Ruth is waking up in the morning feeling breathless. I read everything posted here and will take it all on board - exercise, check her heart condition... Was there anything else - like an asthma inhaler?

Thanks

Richard

[Kevin_1 in reply to Richard33]

Thoughts - There is a horrible chest virus going around at the moment. I had it ++ Breathlessness.

Just a thought.

Best to you both.

Kevin

[Kevin_1]

Hi Richard

No problem.

Liz's breathlessness was very much part of her PSP.

I never fully worked out whether it was the exertion with weakened muscles or whether the PSP affected her ability to breath properly.

More recently I have become aware of a lot of muscle wastage from her having to be so sedentary.

There is nothing wrong with her lungs per se.

Sorry - That's the limit of what I know on this.

Best to you

Kevin

[Richard33 in reply to Kevin_1]

Thanks Kevin. I will keep an eye on it and go to the GP if it becomes a problem.

Richard