Hello, I'm new here and actually am from across the pond. Briefly, my husband is 48 years old and has been experiencing tremor, gait, depression, dementia and cognitive problems such as loss of time; lost of ability to think through problems; and more. He no longer drives.
He has had neurocognitive testing which seemed to eliminate Lewy body, Alzheimer's, etc. But could not conclusively rule out Parkinson's. He has lost his job due to whatever this is and the stress of losing our home does not help his condition.
We've been to a neurosurgeon and three neurologists. No one seems to be able to agree what is occurring. His PET scan, two MRI's and two CAT scans show nothing except normal aging. He does seem to experience the eye movement problems, which appears to be the only distinctive or maybe the better term is differential symptom.
But it is not downward, it's upward gaze, that seems to cause the most problems. The last neuro said to us, "Not all patients read the textbook." We are frustrated and devastated. My first is question is: "Are there any other people on here whose spouse had such early onset of PSP?"
And my next question is this: "How did you finally get a definitive diagnosis?" We still feel as if we are in limbo and this, "Oh, wait another six months and see," attitude is frankly, unacceptable. Any help would be greatly appreciated. Thank you.