hi
has anyone experienced in our peeps a sudden rise in body temperature? it then appears to affect their movement understanding and speech. rog gets this most evenings and afternoons now and is rigid, any suggestions or is this another stage.
much love
julie
Sorry Julie, haven't heard to this! Has it being going on for long? Could be an underlying infection. That seems to be the answer for most things!
Lots of love
Heady
Hi Julie, It could be an infection but an inability to control body temperature is definitely related to CBD/PSP and parkinson's. My Mum has CBD and never sweated in her life. When I do the middle of the night toilet/change I often find her wet with sweat! Often the feet or hands are quite cool or even cold to the touch. Obviously check for UTI or chest bugs but it may well be just a new part of the disease. It comes and goes with Mum and doesn't happen every night.
For over a year now Colin's temperature has periods when it is very high and then it drops as quickly as it is raised. One weekend morning the DN turned up unexpectedly just as I was about to dial 111 as he was red hot. She took his temperature which was sky high, and called her hotline to 111 explaining why. Two hours later an out of hours doctor called and his temperature was normal. On Monday our GP came round and he described what had happened in a very medical way- he said it was a neurological blip. He said he thought the part of his brain which controls temperature has been affected. Babies can't control their temperature as that part of the brain hasn't been developed. Colin's is damaged. It has happened a lot since. Some mornings the bed sheets are drenched in sweat, sometimes they are dry. It can last a few hours or for a very short time. C tends to sleep when his temperature is high and he is unresponsive. When he was still eating, he didn't close his mouth when I fed him and food fell out so he missed meals.
This may not be the reason it happens to Rog. As Heady said, it could be an infection.
X
hi
just what rog does! completey spaced out rigid and not responsive, many thanks
julie x
George sweats and his pyjamas are wet in the morning, I agree with the others could it be the beginning of an infection? Sorry can't be of more help xxxx
Yes my husband has had this recently,one night last week he was very confused and kept trying to get out of bed , one night he called me at 3 am and told me someone was knocking on bedroom window, again he was quite muddled , hot and confused . He was fine within the hour each time. I read NannaB s post and feel her docs explanation seemed reasonable. Water infections have been tested for , there seems to be no other infection going on. There's no end to what this wretched PSP can throw at us !
My guess it has to do with neurofibrillary tangles, hyperphosphorylated tau, and the hypothalamus. The hypothalamus controls, among other things, body temperature as well as sleep and circadian rhythms. My husband experiences these sweats at night. Currently, he is trying a Chinese bamboo sleep mat and so far it seems to be helping. Sorry I could not be of more help.
Christine
My man had rise in temp with pneumonia and increased confusion, but think you mean on a daily basis. Apparently higher temp increases confusion.
I cannot offer any suggestions but thanks for raising this. it is yet another manifestation of this illness I had not come across.. It explains to me why, at odd intervals, Bugs sweats at night to the point where things need changing and also has odd dreams/hallucinations. She can also be very cold on warm days.
I use to tell John he had a brilliant thermostat because he was never either too hot or too cold ,but at night had been always troubled by sweats , not that the troubled him lol , but the bed would be drenched . He alway had a strange smell aroma about him .,
Not a bad unpleasant one .
Once he became really troubled with Parkinsons and started Sinemet they stopped but the I told him his thermostat must T have stuck . He would complain about the cold and the heat .
Getting back to the flushes , he would get thise around five o clock most days and would ask me to open the door . I thought he was changing sex lol .
Flushes are also one of the symptoms or side effects of Meds though as well .
I have read that as the medication is working they can give you a warm feeling . Not that I think that happens to John .
I
My wife's temp was going up and down. 102 degrees and a few hours later 98.8. Her neurologist told us it was the brain shutting down and no longer able to regulate body temp. That was back in December 2015. Hearing that, I was scared I was going to lose her any day, so I enrolled her with hospice. 6 months later she is still with me. I really think she had a bad infection of some sort, probably a UTI. I don't check her temp as often anymore, but do whenever I believe she is warm. She does sweat like crazy during the night. By morning, her pajamas are very damp. But she's only 54 years, so it could be hormones.
Ketchupman
Oh God, that's beyond cruelty! PSP and the menopause!!!!
Lots of love
Heady
Charles sweats so much at night in the bed. But.....not every night. Sometimes he's clammmy and the temperature rises and then falls to normal. I will have to change his t-shirt. Ibuprofen helps him to sleep when he gets so rigid.
Weird disease, so many innocuous symptoms that you can't put your finger on.
We checked for infection, etc. but doctor said it's part and parcel of the condition.
Unless the temp goes up to 101+ I'd just wait it out.
Take care,
Cuttercat
Hot flashes?....I have those too...and night sweats though they seem to be leaving me just like my own youth! 
Hi not for sure but my brother has had that a few times, he gets so rigged that he can't move then it will pass, I don't know for sure but it sure sounds like another symptom of this dreaded disease, my gosh this is horrible everyday it's something new with this PSP out of control if I must say so, but I always think what are you suppose to do, there will be many changes with this so I will do what we all do hang in there and take one day at a time. Many blessings to all. Nettie
My husband couldn't move this morning but, after a while he was able too, very stiffly, I'm learning not to panic at every hurdle, hard though...
My hubby has night sweats and also seems unresponsive and muddled, I thought it might be down to the hormone treatment he has. As well as PSP, he has prostrate cancer, the only treatment they felt he could tolerate was the hormone injections, I guess it's a bit of both but yes, he gets very confused, also, I think he gets dehydrated because of this which doesn't help the situation, Peg for fluids being considered, we are monitoring the fluids and urine passed at the moment xx
I care for B and during night time when I need to help her on to the commode she is also drenched. Sometimes the bedding is also drenched with perspiration not wee. The heating is not on and the room temp is between 12+15 degrees. Checking her blood sugar levels also show average levels of 5 and a max of 9.8.This really got me worried. This does not happen every night. But on some nights change of night clothes and bedding could take place twice a night.
I have ruled out the diabetes and the medication for other medical conditions. I am at my wits end. Therefore it must be PSP related. Am I also missing something?
