We've just had a nice evening at my daughters, for her mother in laws birthday, involved alcohol so a cab home, as my daughter helped us to cab she told driver F had PSP (incase he thought he was drunk) oh he said that's where the brain cells die isn't it? It's rare isn't it? I've heard of that! Maybe he should be a GP!!!!
Lots of love
Debbie xx
Definitely, absolutely no one I know has ever heard of it, except us of course! xx
Isn't that the truth....not a babe but reminds me of the phrase, "out of the mouths of babes " Well it sounds like ya'll had a good time ....nice to have that...sleep well...If you have Gatorade or something with electrolytes, you may reduce the reminder of how much "fun" you had last night!
Oh and we have been asked to be helpers (actually he is helping us) to a young intern at B's gym. He has never heard of the disorder; so I will make copies of all information CurePSP.prg has given us.....he is young and this info and the rest of his education may help propel the info and thus the cure....
I am glad you had fun, I would like to have that
AVB
Amazing! Pleased you had a good time out. X
That IS GOOD and I bet you will be recommending that taxi!
Last year I had a young man come who was advertising as a gardener,he did a couple of days only to clear for me.I took him in to meet Des as Des would see him working and told him he had PSP. He looked very shocked and emotional. he spoke kindly but not patronisingly to Des. Outside he told me he had recently lost his father with PSP. He was a lovely chap but hopeless as a gardener if he had offered any other skills like decorating I would certainly have used him again.Glad you had a night out! px
So glad you had a lovely time, taxi driver should of been a doctor, they look baffled when you mention PSP, hope today is and enjoyable day also xxxxxx
So wonderful that someone has heard of the disease.We need a major documentary on TV instead of endless other programmes x
That is exactly what I thought after seeing several programmes/articles on Alzheimer's, Dementia, Motor Neorone etc. We need someone to look at PSP and what it means every day for our loved ones. I know it is quite rare but there are lots of patients worldwide (maybe it's also time for a 'census' count).
Xx
You must come to our village there are three people living with psp and when i was talking to the lady in our charity shop she asked me what Brian had got i said you won't of heard of it and it's called psp. She said i have heard of progressive supranuclear palsy because thats what my brother died with. Small world. Janexx
Perhaps that's the problem, GP's spend so much time training, they don't go out into the outside world, therefore know absolutely nothing!!!!
Glad you had a good night.
Lots of love
Heady
Great to go out and joy yourself with your family and to get a cab driver who has actually head of PSP must be massive odds. Hope you didn't have a hangover!
Love Kate xx
I'm glad you had a lovely time, and what luck getting a cab driver who had heard of PSP. Best wishes Nanny857 xx
Remarkable! Glad you got to get out!
Noella21
You are so right about our community seeming like the only that knows about these things . I wonder if it would help if instead of speaking acronyms we used more inclusive language by calling these deceases by their full name if it would help people understand and identify what we are talking about? Just thinking .
Dorothy-Thompson Has anyone any knowledge of the Rascal WeGo mobility scooter or any other kind of wheelchair that is
Continuing Care Brickwall
