Hi, I have now got S going to see an osteopath. He is very good and had experience of Stroke and Parkingson victims. But is fascinated with PSP and how it is affecting S. Says all his muscles and joints are in good working order. No sign of any stiffness. Yet, S is really struggling to walk, get in and out of a chair, you know the picture! Zac is saying that S is losing body awareness. When I make him use his left hand, which is trying to close up, he can, yet can't use it otherwise. Zac is getting all S's limbs in ways that I haven't seen in years! It's brilliant and heartbreaking, at the same time.
It is having an effect, but only that it makes moving him easier. S is not feeling any benefit. But it's got to be good for him, to move like this.
We all know that our loved ones can do exercises, but still can't get out of a chair. I wonder if this is where the researchers should be looking at. They are spending time and effort on drugs, as if this IS the only answer. The brain is not talking to the body, drugs AREN'T going to change that, but re-training the brain in some way, might be!!! How? Way above my pay grade, but surely some bright spark could find a way. We all know the brain can be re-trained, when there has been damage. So why not with PSP??????????
When S broke his right wrist, just before he was diagnosed. His left hand, which even then, was trying to claw, suddenly came back on line and is only in the last few months, started to go again. So things can be reversed. I realise, this would be extremely hard work on our part, but personally, I would rather be doing re-hab with S, than mopping up the latest accident! If only someone, could give me some exercises that reach the brain!!!
Lots of love