Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2015

Age of Carers

I am just curious as to what the average age of carers is and how do you cope with the lifting, bending pushing and lack of any social life. I am just turning...

I am just curious as to what the average age of carers is and how do you cope wi...

•9 years ago

Crashed and burned!!!

Well, the inevitable happened! I crashed last week. Was doing so well, trying to get things in place to get help. It was all coming together, but obviously...

Well, the inevitable happened! I crashed last week. Was doing so well, trying ...

•9 years ago

Adventures of Georgepa part3

Yesterday we walked from Rockford to Watersmeet where East and West Lyn combine . We followed the river as it hurries and scurries on its urgent journey...

Yesterday we walked from Rockford to Watersmeet where East and West Lyn combi...

•9 years ago

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Adventures of Georgepa part 3

Londpool revisited

Londpool revisited

•9 years ago

Adventures of Georgepa part 3

Couldn't get on the site last night everything down - The fall at the head of Longpool

Couldn't get on the site last night everything down - The fall at the head of ...

•9 years ago

Leaning to right

Hi B has been leaning to the right while sitting in a chair ( slumped in his case) for a few months.But now his legs have started going to the right as well...

Hi B has been leaning to the right while sitting in a chair ( slumped in his cas...

•9 years ago

john

i have had aletter from the mp regarding the support that we dont get with psp my husband death certificate has he died of pspwhich im going to use if anyone...

i have had aletter from the mp regarding the support that we dont get with psp m...

•9 years ago

Adventures OF Georgepa part2

Thought you might like a photo of the river just across the road from the pub - tried to put it in before but it wouldn't go.

Thought you might like a photo of the river just across the road from the pub ...

•9 years ago

The Adventures of Georgepa part 2

Well I am here and not disappointed . Apart from the arrival of electricity and wi-fi very little has changed- so much that I recognise from over 60...

Well I am here and not disappointed . Apart from the arrival of electricity ...

•9 years ago

Worried

Has anyone had any news about Jill, keep thinking about her? Yvonne xxxxx

Has anyone had any news about Jill, keep thinking about her? Yvonne xxxxx

Yvonneandgeorge

•9 years ago

DON'T KNOW WHAT IS GOING ON

He just told me that he feels like he died and went to heaven. I absolutely freaked out. WTH did that come from and why? He is now in bed going to sleep. I am...

He just told me that he feels like he died and went to heaven. I absolutely frea...

•9 years ago

Adventures of Georgepa part 1

A strange calm has descended on our household - V seems to accept the need for me to have a break but explaining who is coming in and when has been a...

A strange calm has descended on our household - V seems to accept the need for ...

•9 years ago

Case worker visit Positive

Our new palliative case worker came today for our first visit and it went very well. She respected my wishes and explained everything in a very positive manner...

Our new palliative case worker came today for our first visit and it went very w...

•9 years ago

FRUSTRATION

I am so frustrating with D's lack of memory. I asked him to do something yesterday evening, he walked out of the room I thought to do it but.... I could just...

I am so frustrating with D's lack of memory. I asked him to do something yesterd...

•9 years ago

Party time

Here is charlie and josh dancing dancing xxxxxx

Here is charlie and josh dancing dancing xxxxxx

Yvonneandgeorge

•9 years ago

Party time

Here is charlie dancing

Here is charlie dancing

Yvonneandgeorge

•9 years ago

Any advice appreciated

Hello All. It's been quite a while since I last posted. My Dad was diagnosed autumn 2013 and initially our main issues were Dad's rash behaviour, personality...

Hello All. It's been quite a while since I last posted. My Dad was diagnosed aut...

•9 years ago

LSU

LSU Laerdal suction unit

LSU Laerdal suction unit

•9 years ago

Swallowing

Recently my husband is finding swallowing very difficult. I am using Thick and Easy for the liquids and he has a soft diet. He also seems to now produce large...

Recently my husband is finding swallowing very difficult. I am using Thick and E...

•9 years ago

Party tomorrow!

I will be at work, so not so much drinking and dancing for me as just checking in for the conversation when I get a chance - - I love hearing about what music...

I will be at work, so not so much drinking and dancing for me as just checking i...

•9 years ago

Helpful hints and tips. Gadgets galore.

Hello everyone let's get practical. Here's a few of the things I have found helpful. I hope everyone will contribute. Cling film around table mat stops plate...

Hello everyone let's get practical. Here's a few of the things I have found help...

•9 years ago

Change of CCAC to Pallative

They have finally wore me down and I agreed to let them change our file to a palliative co-coordinator. When she called to make an appointment for interview I...

They have finally wore me down and I agreed to let them change our file to a pal...

•9 years ago

PSP getting very tedious

I am carer for my partner he has psp for 9 years it goes on and on feel like Im going out of my mind.

I am carer for my partner he has psp for 9 years it goes on and on feel like Im ...

•9 years ago

Hospital

Well we were up at 6 o'clock this morning to go to the hospital for George's appoinrment, we left at 7.20 took us over 2 hours to get there, our daughters left...

Well we were up at 6 o'clock this morning to go to the hospital for George's app...

Yvonneandgeorge

•9 years ago

My life for the past several months which helps explain my silence I hope; this is a copy of a reply message I sent to Eastender:) Crazy!!

Thanks for your concern and know I'm touched you keep reaching out to me. I decided to wait to respond to you after I got some med test results back, but now...

Thanks for your concern and know I'm touched you keep reaching out to me. I deci...

•9 years ago

Has anyone bought a TGA Powerpack for a wheelchair?

Hi all Yesterday we went to collect a new Rea Azalea wheelchair for my husband which is quite a lot more comfortable for him and is reclinable has lumber...

Hi all Yesterday we went to collect a new Rea Azalea wheelchair for my husband w...

•9 years ago

caregiver

I care for my brother who has psp

I care for my brother who has psp

•9 years ago

TAKING MEDS

I AM GOING NUTS. DON HAS TWO PILL CASES, WHICH OF COURSE I FILL FOR HIM, ONE FOR THE AM AND ONE FOR THE PM. I WAS STANDING RIGHT NEXT TO HIM AND HE WAS TAKING...

I AM GOING NUTS. DON HAS TWO PILL CASES, WHICH OF COURSE I FILL FOR HIM, ONE FOR...

•9 years ago

Tired

Hi all, just wanted to say, did not realise how hard this is, trying to be patient, and not getting upset, feeling so lonely. George did not get up yesterday...

Hi all, just wanted to say, did not realise how hard this is, trying to be patie...

Yvonneandgeorge

•9 years ago

Going away

Told V I was going to be away for two nights at the end of this week - went down like a lead balloon - tears , cries of desertion and "you won't come...

Told V I was going to be away for two nights at the end of this week - went do...

•9 years ago

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