Hi everyone, I find myself turning back to this site,. I'm scared about even looking on here because for me it's facing facts, and that I am finding really hard! With my mam only being diagnosed a couple of month ago I know we are nearly 3 years in with her having psp... I see her deteriorating slowly but it's so hard just knowing it IS happening. My family seem to be dealing with it ok, but for me being here living with it 24/7 As I'm always with her, I know things aren't going to get any better, if not worse... At the moment I find myself just sat thinking WHY, why my mam at 60 years old who has had a shit life brining 5 kids up on her own and my youngest brother who is 19 and just gone off to uni, this should be her time now. I can see she is scared and I don't know what to say to her, I do let her know we love her and comfort her.. I take her out whenever I can, 3/4 times a week even if it's just for a walk round the super market, the future is so scary... I know people will say take one day at a time, and believe me I try, but it's there isn't it, the unknown, the thought of knowing what is to come... I also have a partner and son who is 10years old, and I don't want this affecting them but it is. Life is so cruel... Sorry for rabbiting on xxxxxxxx
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