Throat Pain

[mthteach]

Has anyone had sever throat pain with PSP before? What do I do to help my husband with the pain? ENT or Nurologist

I try and do things with my husband to get his mind off the pain. He takes whatever over the counter meds he can get to help the pain.

[Glyder]

My dad is in a carehome and they give him paracetamol every 3 times aday to take away the pain away he has to have them crushed in water. I Hope everything goes ok debbie xx

[jimandsharynp]

My wife didn't have this. Is it possible it's something as simple as a too dry mouth? If the mouth isn't creating saliva it might dry out and cause discomfort. Someone on here has an answer for you I'm sure. Hugs, Jimbo

[Hidden]

Could it be muscle spasm of the throat and neck muscles and the muscles of the pharyngeal area inside area at the back of the throat? Do you have a muscle relaxant you could try to see if this would give any relief, perhaps speak to your consultant about it! Sorry, not much help with this! Have you checked for thrush infection in the throat?

[mthteach in reply to Hidden]

I do have a muscle relaxer my doctor gave me. Thank you for your advice. He is moaning all night long in his sleep. I will do anything to help him

[JudyJ]

I'm not clear from your post if he has seen a doctor for this symptom. If not, I'd encourage to have him evaluated.

I'm a person with PSP. It's my understanding from the medical professionals who've been working with me that the disease can weaken throat muscles as well as vocal chords, cause spasms, etc. If not done so already, it may be very helpful for him to see a Doc about this to further define the cause of the soreness and help treat it.

I'm not an advocate of 'more' medication, but sometimes it's called for, especially if a symptom is significant enough to interfere with the person's quality of life. There is no shame in treating the symptoms of PSP that interfere with the person's quality of life. Less pain often results in improved functioning as well as elevated mood.

Is there a reason why he may not be able to take a prescribed pain medication vs. OTC? Pain management is so important with PSP or other diseases for that matter as is the goal "to stay ahead of the pain".

I do agree with Jim that his throat and related tissues in that area may be dry or excessively dry which would certainly result in soreness. I know some of the meds I take have this side-effect and I've had to almost double my fluid intake, use a dry-mouth oral rinse...and eat lots of popsicles to ease the discomfort.

Just something to think about. I really hope his pain improves.

Judy

MN

USA

[mthteach in reply to JudyJ]

The doctor game him a medication that helped with drooling. It could be over working on drying him up. We have an appointment the return to the same doctor (ENT) Tuesday. Thank you for replying to my question. I would not have thought about the drooling medicine w/o you bringing it up. Thanks

[mthteach in reply to JudyJ]

We have seen 3 doctors in the past week. The ENT, GI doctor, & his internist. The GI dr. scheduled a out-patient scope to be done. The ENT ran a tube to look down his nose,& said he has swelling in his throat. The internist gave him a prescribed pain med. to help. He has had the pain for about a month. He has taken the meds for dry mouth, otc, and they did not work. He is taking a med for drooling. We have heard it can cause sore throat pain, and he stopped taking it for about 3-4 days to see if the pain would stop. We just do not know which way to turn. Thank you everyone for advice.

[JudyJ]

How frustrating for all involved. I do have a clear understanding in what you're going thru in terms of seeing 3 doctors in a week and the stress it creates. Feels crazy at times, doesn't it? I've been going thru quite an ordeal for the last month involving skin lesions that have made me quite ill. Previously posted it was hand-foot-mouth disease. It's not. And may be Parkinson's-related. Saw my Neuro Wednesday for a routine appointment who sent me directly to the E.R. due to the lesions and fever.

Of course, nobody in the ER had a clue what PSP was or what the lesions/underlying illness is. Gave me an IV of fluids and a couple of patronizing pats on the head. GRRRR.

I'm seeing my Internist today and have a Dermatology appointment next week. I've waited a month for that Derm appointment. Set it up when this first started.

Are Dermatologists as hard to get an appointment where you are? I will post about this later, probably, as to what my Internist has to say.

I am sorry about your Dad and all family members and friends who are impacted by PSP. Know you are not alone.

Best regards,

Judy

MN

USA