My wife experiences a feeling like she is ... - PSP Association
My wife experiences a feeling like she is walking on air,no dizziness but a feeling like she will fall because there is no floor HELP
Dear Sera1956, I'm so sorry not to be able to offer any help, and trust someone else will chime in with something more useful. I just want to express my concern for you both. What you describe sounds really nightmarish. How long has this been going on? All I can say is that with psp, in my experience and as others have said on this site, the symptoms come and go and change over time and this feeling of your wife's may pass on its own. Is she seeing a neurologist? Easterncedar
Yes she sees a neurologist.it started 6 mos ago and is getting progressively worst.they just shake their heads and say they wish there was something they could do
Is she taking any medication?
Yes.levodopa Carbidopa ,namenda
Delusions are among the side effects listed for levodopa-carbidopa, as is dizziness.
Do the levodopa and carbidopa seem to help? With psp they generally don't, or if they do it's only for a short time. I believe that's one of the ways they know it's psp and not parkinson's disease. There has been some discussion of the side effects of the dopamine drugs on this site. You might find some useful information if you look through past posts on the subject.
I think they stopped working.Every time they increase the dose,she gets worse
This was the first symptom she had about three years ago.long before levodopa
Hi,Sera 1956,
Just found your post and wanted to reply.
My husband ,who has CBD kept having the terrifying feeling that he was falling into a hole and sometimes he even thought I was, or that he was on the ceiling instead of the floor....he used to get so frightened until the illusion or feeling passed.
He used to always know when it was going to happen and I would try to distract him...he hasn't had the feeling so much lately, thank goodness....not sure why, though!
You take care now
X
Yes, my wife has a similar feeling. As sense of falling but not like vertigo. We always held hands and that helped, later arms. Unfortunately falls are frequent in PSP and one of the causes of death to PSP patients. One person I know fell and had a brain bleed but survived, lucky. Surgery under anathesia is NOT good for dementia patients either so breaking a hip or ..... is also a bad thing. I started using a transport chair for my Sharyn probably before she really needed it to prevent falls. Jimbo
does she by any chance take a diuretic . I did once and that's what happened. To me as soon as I stopped taking it I was fine .
I feel the same, feels like walking on air and can't get the wall or anything and fell. As if I am on another planet
