Hello, I have just recieved the news my father has PSP. We thought he had stage 05 parkinson's, as he has hunched gait, mild dementia, drooling, difficulty eating but still a voracious appetite, falling over suffering infections, and now complete incontinence. He still has some mobility, but it fades after noon as he tires. Also he sleeps more than he is awake. The neurologist told him to "batten down the hatches" and prepare.
I believe he hass been manifesting symptoms for 5 years, its over 3 years since I brought him to an optomotrist to have a prism fitted to his glasses as he was struggling to read. It seems as though his symptoms plateau and then there is a sudden drop or loss of mobility or function, such as the incontinence, and it just doesnt come back.
Do these lines strike a cord with anybody from their experiences? I read on the NHS web site that he should fill out a pre-treatment agreement list, while he still has cognititave function. How does one broach this subject with a person that has just had the diagnosis?
Is there any way of telling what the timeline might be?