Does any other PSP sufferer have problems with Pseudo Obstruction of the stomach/bowel?

[davyh]

[Hidden]

Hi davyh

Just noticed no replies to your query. There are certain gastrointestinal "pacemaker" cells (Interstitial cells of Cajal) that are involved in the motility of the stomach and intestines. Some Parkinson's sufferers have been shown to have PseudoObstruction of their gastrointestinal system (since there is nerve damage associated with the function of these cells).

I am aware that some PSP sufferers have gastro problems and it is possible that this condition should be considered. I am currently experimenting with my wife's gastric reflux that may be possibly a result of PSP affecting nerves that are responsible for the oesophageal muscles (sphincter - that keeps the food in the stomach and prevents reflux). She takes proton pump inhibitors for the reflux but with little effect, so it may well be a "mechanical muscle" problem (due to PSP) rather than acid problems etc in the stomach.

Anyway, I think a medication called octreotide has worked well with pseudo obstructive gastrointestinal problems, but you'll have to check this out with a gastroenterologist (who needs to brush up on PSP and its affects on the gastro system).

Sorry I cannot help much with this problem, but I'm out of my depth here.

All the best

T.

[davyh in reply to Hidden]

Thanks Strelley, I will certainly take up your comments with the consultant who is dealing with

my wife,who is in hospital at present due to the psuedo-obs.

[jillannf6]

Hi

Ihave had reflux probes b4 dxd wth PSP and they had come back so am on a mend which prevents choking etc in rhe early hours

Lol jill

[gwend]

my dad who has PSP does have problem going to the loo and is quite constipated. this is linked to the fact he is barely mobile and this affects transit. His doctor has prescribed a powder he takes twice a day for that and my mum is watching intake of vegetables to make sure bowel movement are regular....

sorry for the graphic details.

[jillannf6 in reply to gwend]

hi gwend

sorry your dad has PSP and has bowel probs as well - it is v diffciult as i think the anal sphincter muscles do not work at all well

sorryh fo rthe details as well

:Lol Jill

[82wendy]

My mother in law has problems with constipation I believe that she has not got the strength to push it through and gives up she is I mobile and is not eating much she has laxative daily.

[Rockfly]

My mother in law uses lactulose every day, 15mls in the morning and we eat a lot of veg and fruit on her museli in the mornings, she is now regular and it makes it easier as it can cause her bed hemeroids from straining.

[jillannf6]

HII

IT is relevna tto constipaiton aS well is is tnot?

rhansk for the titps here

whe rewoudl webe iwthout htis site?

lost i am sure

lol JIll

:=)