Hi all, been going down the old road, why?how? Etc. etc. and have come up with this theory!
How long has you or your loved had PSP?
From reading all of your comments over the last few months I am beginning to realise that most people seem to be lasting about 10 years (give or take) from diagnoses. With that wonderful thing called hindsight I know S has had PSP symptoms for at least ten years before we found out what was wrong. At least, that's when I started noticing little things. I went to the opticians to get my eyes checked because every time I was in the car with S, we seems to get rather close to the curb! (Of course it was me with the problem,) I now know that it was the spacial awareness going in S. About the same time, the two year old temper tantrums seem to get worse, but how long had this been going on before I actually started to question it, another 10 years? Therefore 20 years of showing symptoms.
Now we all know that PSP is an extremely slow condition, so using exponential curve, could he of had PSP for 40 years before that, not showing any signs of symptoms? The point I am coming to, are you born with PSP? Nobody knows what causes it and all the research seems to be to find the trigger, but what if it's a genetic malfunction at birth?
I know that's a frightening thought, because that means no cure, but it might help get the symptoms recognised a lot earlier and therefore some of the drugs might be able to help if taken sooner, before things get beyond repair.
Or does this just prove the point, that I really have lost the plot!!!!!!!