Margaret was diagnosed with PSP 3 years ago and has now limited mobility, unable to stand or walk unaided but our main difficulty is she has the urge to go up to 18 times daily and often up to ten times from her bed when I have to assist her. She is continent but never sleeps for more than a couple of hours before needing to visit the loo. We have wonderful help from our neurology nurse and care team who all visit here at home but this has us all stumped. Peter, a tired carer.
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