My husband who as PSP as suddenly started having his jaw locking and he cannot open his mouth at all, the panic in his eyes is awful and wonder if anyone else experiences this. I did not know what to do but massaged each side of his jaw and under is chin and placed a warm cloth around his jaw and eventually after about fifteen minutes his jaw relaxed and he could open his mouth, this as happened twice today and it is very frightening. My husband is in the late stages of the illness, can no longer communicate at all, is doubly incontinent, can only walk with help but only very little, he is bent forward both his head and body most of the time and as difficulty swallowing and choking a lot of the time. I find it really hard to watch him deteriorate and each week something new seems to crop up and something else to find a solution to and deal with. Any suggestions would help me and also although I don't post much I have had lots of help from reading other posts.
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