It is somewhere that I have been able to go for advise throughout Mums illness and felt that I wasn't alone in this long hard journey as her daughter and carer, sometimes I would spend hours just reading peoples questions and answers to broaden my knowledge of what to expect and ideas to help Mum with everything she has had to go through and sometimes I would post a question and got some lovely messages back that helped a lot.
Thank you all again and I will keep using this site but this time answering any questions I can to help others like My Lovely Mum. God Bless to you all and let's together try and find a cure for this awful illness XX
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JanStott
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hi jan stott i would just liker to say how sorry i am of your mums passing mate i know that you will have some lovely memories of her \\ take care and try not be to sad think of the good times you had together peter jones queensland australia psp sufferer
Oh sweetie I am so sorry to hear of your lovely mums passing. Try to be thankful there is no more suffering. As you know I lost my Mum too very recently, so I'm right there with you my lovely. Sending you a great big hug and know my thoughts are with you and your family.
Please feel free to private message me anytime. Please take care of yourself now.
I can not say it any better then Jo and peterjones.
Deidre in BC
Hi Jan
So sorry, to you and your family, for the loss of your mum. Thank you for keeping on this site to help others. Your experiences will be needed as carers and sufferers search for information about this awful disease.
So sorry to hear of your sad loss. Thank you for keeping involved in this site. I am exactly the same as you, reading and re-reading the messages searching for help and information from others peoples experience so as to do the best for my father. I just do not know where else to turn.
I'm sorry for you, and relieved for your poor mother... my mom also suffers and is in the final stages of this gruesome disease... please try and remember the mom that you had before PSP, that is where you'll find your happy place.
Sorry for your loss. I think my mum's in about the middle stage of this disease. It is really difficult for us carers watching our loved ones suffer. The only consolation is that your mum is at peace now xx Lindsey
Sending love and hugs from Ireland at this difficult time <3
Dear Jan, so sorry to hear you have lost your lovely mum. I still stay in touch on here for the same reasons and would love to send you the biggest hug. I hope you can find some comfort in your mum's release from suffering and not having to watch them helplessly is such a relief. Best wishes to you and your family xxx Dianne
My thoughts are with you all. One thing we found helped last year was a couple of large picture frames filled with photos. This was put out at the "wake" after the funeral and it was good for people who only knew Tony with PSP to see the lovely man we lost. I still have the frames where I look at them every day (it is just coming up to the year since Tony was released.)
Our son also felt that by going through and arranging the photos he had been able to do something useful.
Take care and by staying on this site some good will come from your experience.
Mo
Dear Jan,
So sorry for your sad loss but thank you for posting such a lovely message. Take care, Plum.
I'm so sorry to read about your loss. I hope you can find some comfort knowing she is now at peace. Dad passed away 17 days ago and the heartbreak is just too much to bear. Don't know what I'd do without this site. Love to all xxx
Dear Jan, I'm relatively new to this site and I am finding it somewhat comforting. Not sure what stage my wife is at but other than her constant falling she seems to be doing not too bad. So sorry to hear of your loss but at the same time I'm sure it's a bit of a relief knowing she is in a better place. Please stay on the site as I'm sure you will be able to provide valuable insight for those of us who continue on the horible journey.
Thank you so much for your kind words I am really struggling to remember Mum before the PSP these last few days, but we had Rev Dianne from our local church visit us today to discuss Mum's funeral this Wednesday and once Mum's Grandchildren started talking about lots of memories they all have mine slowly starting coming back I'm feeling a bit better after talking to her and now I am going to write a poem of Thanks to my Beautiful, Loving, Caring Mum..... mrsfarringdon, groovychick and JoJo-K my thoughts and prayers are with you at this very sad and difficult time try and stay strong even though I know it's hard to remember your loved ones before this awful PSP got hold xx
Every one of you stay strong and cherish every moment with your loved ones.
Bonjour Jan....we all know that there will one day be an end to the PSP suffering...but when that release comes
it's still very hard to bear.My sincere condolences Especially when its a loving Mum .As a dear friend said to me when my Mum died of Lupus many moons ago,"..it only happens once, thank God!" But in the case of PSP where the loved one disappears inch by inch its so hard to recall that the Mum was like before it took hold. That's why wifemos idea of putting as many good time photos as possible together for all those mourning to see, is such a great idea.
I just found the most beautiful photographers photo of my bride with an enormous flower bouquet ---she'd been voted woman of the year---and had that framed on the casket. And everyone got a copy in an effort to erase the the ravages of her last PSP years.
Jan,had your Mum gifted her brain to the PSPA Brain Bank.?
Dare I make a plea to all reading Jan's sad posting to consider this wonderful gift so researchers can one day find out more of PSP...and furthermore a CURE!
With you in mind,
best brian
Sorry to hear your mum has gone but I know how you are feeling and am thinking of you. Xx Dianne
Dear Jan lots of hugs to you and take care of yourself. There is still a way to go before the ravages of psp can ease from your daily life. Remember the good times xx
Thanks very much how are you ? I read it's nearly a year for you since you lost your Mum.
Every day there is always something or someone that I want to tell Mum about but I speak to her and I hope she can hear me I think what is more upsetting for me is that she won't see her Great Grandson (my Grandson) grow up and when he does something new like they do at 18 months old I just hope she can see him and is watching us Take care and I hope you are feeling ok xx
Thank you Ultramodern for your kind words and everyone else on here..............no we didn't gift Mum's brain! We know that my Mum went through so much and we couldn't have asked her that question I know that seems selfish but it was hard enough coping with PSP and everything that goes with it, I do have regrets but I suppose you have to think of your loved ones first and foremost, sending my best wishes to you all xx
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how are you ? I read it's nearly a year for you since you lost your Mum. 
Fly high Mum - CBD 12 days no swallow
My mum. 
I feel so useless
