stomach trouble

Sorry to hear about your stomach trouble & sleep deprivation! That sucks!

My Dad doesn't have any of these problems I'm afraid.

On the sleeping front, have you tried any oils to aid your sleep? Maybe a bath with camomile oil before bed, if you are able to take a bath?

Sorry I'm not much help.

Prayers for you xx

Hi Ray....sorry you seem to be suffering at the moment. Frank doesn't have those problems but might it be worth having a word with your PSP Nurse or your GP. Maybe even your Speech Therapist for any answers. As for sleeping, Hannah's idea may be worth a try & also perhaps a drop of Lavender oil on your pillow or a drink of Camomile tea. Sorry I'm not more help. Take care & keep smiling. Love Hazel B xx

Hi Ray - so sorry you're having trouble sleeping. Perhaps if you try all the other suggestions they may help. You could also try a combination of calcium and magnesium it is supposed to have a calming affect on the body, try one during the day and then one before going to bed, but OF Course, you must check with your gp that it will not have any affects on any other mediciation you are taking first. Another thing that may help is some light music in the bedroom, it does tend to take your mind of other things.

good luick and take care.

dorothy-thompson

Hi Ray

Sorry to hear you are having these problems. Tony often has stomach ache, it comes and goes, not sure if it is his meds. The doctor thought it was his stomach muscles tensing up. As to the weight loss, he has gone from wearing size 36 trousers to 30, not sure how much weight that is! He doesn't want to eat as much as he did a year ago. The speech therapist suggested that he start Fortisips but that gave him a problem, I give half a bottle in the morning and the rest later, seems to work so far.

Tony has the opposite problem with sleeping, he sleeps 2-4 hours during the day then goes to bed at 8.30 until 7am. He does wake up confused and angry even after all the sleep and antidepressants! Sometimes he paces around during the night but it is like he is sleepwalking.

Take care and I hope you are feeling better soon

Lorraine

Ray - sorry about your problems, are you sure there re no ulcers that could b causing the troubles. Hoping it all eases off for you

x

Hi Ray

Sorry to have taken so long to answer but I was rather caught up with other things.

My husband never had the stomach problems but he had a lot of trouble sleeping and like yourself woke up regularly at 2.30 am every morning. He seemed to be a lot better with the tv on so I bought him a pair of earphones so that he could have it on all night if he wanted to. Perhaps it was the sound of someone's voice that helped him but it worked quite well. Might be worth a try.

Regards

Lina

Hello Ray

Richard, my husband DID have the stomach problems like you. He lost weight and also had the pain in his stomach after eating. It was explained to us by his previous PSP Nurse that the digestive system - as with every other system in the body - seems to be affected by this blasted PSP. With the stomach it all gets very sluggish and doesn't work as well as it should so food isn't broke down so efficiently. Richard was prescribed liquid Gaviscon after his meals to alleviate the problem and the reflux/indigestion. Gaviscon used to do the trick. Some days he didn't need to take it so his nurses would always ask him first if he needed any.

The weakness in the arms and legs, is all part of PSP as it slowly progresses and sorry Ray, but the disturbed nights seem to be par for the course too. Not an awful lot you can do really although your GP may be able to prescribe something to help you have a more settled night. Anything is worth trying. All that you describe does seem to be a common problem. Having a radio on hand or a tv is a good idea too or even talking books.

Does your GP know much about PSP/CBD I wonder? I am amazed how many medical professionals STILL don't. I asked my husband's new GP when we first went to see him 2 years ago if he knew or had heard of PSP? He admitted he had heard of it although didn't know much about it. I then asked if he would like to receive some information about the illness. He said he would. I contacted The PSP Association and they sent him a load of stuff. He (luckily) was very grateful for it and from then on he became really 'clued up.' Your GP can also contact the PSP Association's nurse for your area, who can give him any help and advice should he need it, on what medications are helpful etc.

Let us know how you get on.

Maggie

hi maggie

hope your keeping well thanks for the information im very

greatfull for it ive got cbd but its much the same as psp i got

it four years ago at the age of 49 but im copeing pretty well

at the moment,My gp is quite clued up on cbd/psp but he is the

only one at our surgery that is and he retires in a couple of weeks

so i shell be back to square one i have got to see him tomorrow

afternoon so fingers crossed, i do have a very good parkingsons

nurse so thats very helpfull, i throught the sleepless nights were

part of the disease thanks for confirming it, I was getting hydro

therapy to help with the stiff legs and arms but due to nhs cut backs

they have stoped that now i also have holistic therapy which helps,

Thanks for careing and you take care,

ray

hi ray

i too am having trouble not sleepign and am hoping to go back on toa low dose of seroquel when i see the gp romorrow

(i used to take it with an anti depressant unitl i changed the anti depressant and used to go off to sleep much better (and saty asleep)

i am v agitated and restless mulch of the day time, and night itme if i am awake

r u restless and agitated??

there ae lots of meds 4 anxiety when a warm

bath p/herbal tea will nto do the trick

love jill