Is anybody interested in or knows of a support group?
I am 36 and have moved back home to help care for my mum who was diagnosed with psp 2.5 years ago. I am finding it very tough to cope with and watch the changes. It would be great to speak to someone who is going through it or has been through it.
hi victoria
where r u based ? in England?
there are support groups all ove rhte country
the psp assoc willl let you havea detailsl if u have joined
jill x
Hi
I live in Elmbridge, Surrey. My husband had PSP for seven years.
If you live anywhere near me we could get together at some point.
Regards
Lina
Hi Victoria,
The PSP Association has support groups set up all across the country which you are very welcome to attend, if you would like to ring us on 01327 322410 we will send you a list of supports groups to see which is closest to you.
Alternatively you can visit the Support Group section of our website
pspeur.org/care_and_support... to see what is currently available in your area.
We are also beginning to set up some new Volunteer-led supports groups with a community focus, so if there is not a support group close enough to where you live and you would be interested in helping out then we would love to hear from you.
All the best
Helen PSPA
Hi thank you for you messages I live in streatham in south London. I am actually suffering from panic attacks at the moment which makes it for me to travel.
hi victoria
the panic attacks must be awful- i nev rhad them but suffered from depression for many many years and know of people who did have them
butt if you can keep blogging on this site the support is there
if you have a parkinsons nurse attached to the locoal hospital they may come out and see you and your mum
good luck your mum is so luckyi to have you!
love jill
What area of the country are you in> I am in North East London and we are starting a support group meeting in September in the Brentwood Area. If you are not in my area speak to Cameron Wood at the PSPA.
Jenni
