vaccine or not?: It’s that time of year when... - PSP Association

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vaccine or not?

Rose1sunflower profile image
7 Replies

It’s that time of year when the Covid vaccine is being rolled out. Last year my husband reacted quite badly to the flu vaccine and wasn’t well enough to have the Covid vaccine the week after. In the end we decided to not go for the Covid vaccine. I’m not anti vaccine but just concerned about the reaction after. Interested to hear others views.

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Rose1sunflower profile image
Rose1sunflower
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7 Replies
MullerRice profile image
MullerRice

I have had countless flu/RSV /shingles/Covid vaccines and never had an adverse reaction to any of them.

Tulipstaffie profile image
Tulipstaffie

hi Rosie1

My husband has the same reaction to vaccines. When he had his first shingles vaccine he fell & cut his head. It took time for me to connect it to the vaccines.

What I did is give him a paracetamol tablet for the first few days after. One every time he had his usual medication. It seems to work for him.

Made him less zombie like.

Take care xx

Tippyleaf profile image
Tippyleaf

Hi Rose1sunflower

Helpful to know what type of reaction your husband had to flu vaccine.

The Covid and Flu vaccines are quite different in type. The most common side effect of the Covid vaccines is to have a sore achy arm - often more achy than post flu vaccine. Other side effects include headaches, fatigue and flu like symptoms. Usually these only last a few days . All of the above will normally be helped by Paracetamol.

You know your husband better than anyone else , has he had side effects to previous Covid vaccines - if he has it is likely he will again. If previously he has been free of side effects likely he will be again - but not guaranteed.

Sometimes minor upsets like side effects can be more challenging for someone with PSP and it takes a while to regain their equilibrium.

Go with your gut instincts there is absolutely no right or wrong answer here

Best wishes Tippy

Soltmany profile image
Soltmany

no more “vaccine” after 2020 please

timbowPSP profile image
timbowPSP

Hello Rose-1-S, thanks for this opening. Having lived thro 'epidemics' such as the 'thalidomide scandal', and others which were heavily promoted by the government (but with disastrous consequences) I am very wary of any kind medical sponsorship and try to live a simple drug-free lifestyle.

When Covid happenedI was extremely happy to see a NHS letter pinned up in the local a surgery to say that 'anyone who has a neurological condition or has had shingles is advised NOT to receive the vaccine. I fall into both categories and hence my single-shot answer ..... NO!

As an 83yr old male diag PSP 7yrs ago, I have twice had mild Covid, my principles are still intact, and despite mobility and some other issues, I am very social and interactive person (and active therapist until 2 yrs ago).

I am sure I chose correctly, for myself, and hope you also avoid this mixed, unproven cocktail of drugs! Best wishes TimbowPSP

Zerachiel profile image
Zerachiel

Hi, my wife had regular covid and flu jabs with no problems; She also had covid once which was not good.

Bergenser profile image
Bergenser

My husband was always up to date with his pneumonia jab, flu jab and the Covid jab / boosters. He tolerated the vaccines well other than a sore arm and a slight headache - paracetamol kept him comfortable. I also took the jabs - mainly to protect him. He never had cold or flu after his PSP diagnosis.

He contracted Covid only once - when he was already hospitalised for a different infection. His last booster had been 5-6 weeks earlier so his Covid was mild, but it definitely contributed to his decline and Covid was mentioned on his death certificate 😢.

Everyone is different so please discuss with the GP - my personal stance would be to accept the protection you can get - Covid is not good. 🌻💜

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