THE next GHIC Q&A Session this Thursday - Hughes Syndrome A...

Hughes Syndrome APS Forum

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THE next GHIC Q&A Session this Thursday

MaryF profile image
MaryFAdministrator
7 Replies

Please put your comments underneath the actual Facebook Post, not on here: It is live on Facebook, however can be also watched later. Facebook link at the bottom of this post:

Reminder about our Q&A coming up this week!

On Thursday at 3:45pm we'll be welcoming GHIC Chairperson Dr Arvind Kaul to answer your APS questions live. Thank you to everyone who have already submitted their questions - if you haven't already done so, add any questions you have to the comment section below. (under Facebook post).

We are only able to host Q&A sessions like these with your help and support. If you can, please consider making a donation to GHIC so that we can continue our vital work: ghicworld.org/donate/

facebook.com/TheGrahamHughe...

MaryF

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MaryF
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Vailea profile image
Vailea

Thankyou Mary .

Piscesdreamer profile image
Piscesdreamer

Hello Mary! I have 3 questions:

1-

What is the significance of my ANA pattern changing from homogenous to cytoplasmic?

2-

I have recently been told My APS and UCTD are in remission. I am feeling great with the exception that I have had bilateral swollen axillary lymph nodes since July. My cbc is normal. I show no inflammation in my esr and crp. I have no fatigue and no fever, bowel movements are normal. My mammogram, breast ultrasound and mri are all normal. My cologuard screening is normal. I had a negative skin cancer exam. I was checked for oral cancer by my dentist. I saw my gp, then I saw my Hematologist/Oncologist. They are suggesting it is my autoimmune causing the swollen lymph nodes.

Does APS or UCTD cause persistent swollen axillary lymph nodes?

Are there any cancers that are associated with APS or UCTD that I should be screened for?

Should there be more urgency in finding the cause of my swollen lymph nodes?

3-

I have read that covid19 can reactivate Shingles and EBV. Could the Moderna vaccine reactivate either Shingles or EBV causing bilateral swollen axillary lymph nodes?

Thank you!!!!

MaryF profile image
MaryFAdministrator in reply toPiscesdreamer

Did you put this under the actual event, sorry away currently, limited internet access? MaryF

Piscesdreamer profile image
Piscesdreamer in reply toMaryF

After I posted I realized the q&a was yesterday! I just watched the recording. He did answer two of my questions!!!Thank you!!!

MaryF profile image
MaryFAdministrator in reply toPiscesdreamer

Great, really pleased for you. MaryF

MaryF, thanks for the link. And excellent session. 🙏🏻

MaryF profile image
MaryFAdministrator in reply to

Goody, I must watch it, I was in the middle of nowhere with no phone reception most of the time and certainly no internet! Back to reality now. MaryF

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