I’m in the exact situation as you are. You say all the things I have going through my head .

[Dianehunt212]

I had a lupus anticoagulant test same as you and they space it out as

You said every 3 months . I have had a huge clot in my subclavian which was so big it had spread from subclavian to side of my breast and under my arm pit . I was in hospital for a week . They put me on heparin IV drip and Coumadin , but Coumadin takes at least 5 days to kick in . And now I’m seeing a hematologist who does not seem to raise any RED flags or concern that my Lupus anticoagulant is so high , high Normal?

Because it’s only one # away from being positive. And my feet , omg I have exactly the same thing in my feet. Do you get

“Flare Ups”? I do and that’s when my toes hurt me the most . Hard to sleep.

But do you get tired a lot ?

I do at times . And also a little “BRAIN FOG”

As they call it . Almost like fybromyalgia.

I am waiting to get my last blood results from hematologist in a few days .

I’m so interested to see what he comes up with. Hope you find your answers and wish you the BEST! Frustrated in NYC.

[Croyboy01]

I’m going to the haematologist next week. I’ll get my bloods test for the INR levels. Then I’ll start Warfarin. And yes can’t sleep for more than 4/5 hours. Constantly tired. Got persistent headaches, brain fog! My memory is terrible. I couldn’t even remember my address the other day. Lol. But hopefully things will settle down when I get the right meds.

[LindaMorrell in reply to Croyboy01]

I get tired. Brain fog and at the moment whole body sort of tingling, sharp head pains headaches funny vision. All niggling drives me crazy

Aspirin and warfarin and blood pressure tablets sort of keep me ticking along. Good doctors are the secret

Stay positive and keep finding more and more info. All the best